sonia: Quilted wall-hanging (Default)
[personal profile] sonia
“A history of post-viral conditions,” an excerpt from Invisible Illness at Sick Times, excerpted from INVISIBLE ILLNESS: A HISTORY, FROM HYSTERIA TO LONG COVID by Emily Mendenhall.
Medicine has transformed radically since Hippocrates. yet, there remains reticence to embrace the ways in which viral infections fuel long-term neurological and systemic disorders that can radically transform someone’s health. The striking parallels between the Spanish flu and post-viral syndromes that have emerged throughout history emphasize how much information we do have, and how history may be our greatest teacher.


"The Sick Times is an independent news site founded by journalists Betsy Ladyzhets and Miles Griffis. We report on the Long COVID crisis, COVID-19, and infection-associated illnesses."

(On a lighter note) 6th grader's science experiment answers, 'Do cat buttholes touch every surface they sit on?' by Jacalyn Wetzel, Upworthy staff.
The results? Turns out that, no, cat buttholes do not touch every surface cats sit on. Now, let's all take a collective sigh of relief while we go over the details.


A Culture of Resilience by Lindsey Foltz, a beautifully written and photographed exploration of home food preserving in Bulgaria.
[I]ndustrial and small-scale agriculture; cultivated and wild foods; formal and informal economies; leisure and work do not function as stark polarities but rather in interconnecting, mutually supportive relationships through which home preservers practice, develop, and share their craft. The entanglement of formal and informal economies, domestic and wild foods, smallholders and industrial farms, local and global influences visible in everyday food practices in Bulgaria specifically and Eastern Europe more broadly condense in household cellars. As the cellar tour I describe below illustrates, these uniquely social practices provide resilience in terms of food security and the ability to pursue something more than mere survival.


What the World Got Wrong About Autistic People by Ludmila N. Praslova, Ph.D., SHRM-SCP via [personal profile] andrewducker.
Prejudice is one reason decades of research got autism so wrong. Researchers measured autistic people against neurotypical expectations and called every difference a deficit. They tested empathy by measuring in-group preference and missed commitment to universal fairness. They measured creativity by counting the number of ideas and missed originality. They saw moral consistency and called it rigidity. They saw deep engagement and called it rigidity. They saw sensory richness and called it disorder.

Most critically, they failed to ask autistic people about their inner experiences. They studied autism without genuinely listening to the autistic perspective. For decades, science examined autistic people through a lens of pathology and deficit, rather than dignity, comparing us to animals while missing our humanity. But autistic people don't lack humanity. Research just lacked the humanity to see it.

Whole book: "Mutual Aid"

Jan. 11th, 2026 07:54 pm
sonia: US Flag with In Our America All People Are Equal, Love Wins, Black Lives Matter, Immigrants & Refugees are Welcome, ... (tikun olam)
[personal profile] sonia
Mutual Aid by Dean Spade is a whole book available online. Subtitle: Building Solidarity During This Crisis (and the Next).
This book provides a concrete guide for building mutual aid groups and networks. Part I explores what mutual aid is, why it is different than charity, and how it relates to other social movement tactics. Part II dives into the nitty-gritty of how to work together in mutual aid groups and how to handle the challenges of group decision-making, conflict, and burnout. It includes charts and lists that can be brought to group meetings to stimulate conversation and build shared analysis and group practices. Ultimately, helps imagine how we can coordinate to collectively take care of ourselves—even in the face of disaster—and mobilize hundreds of millions of people to make deep and lasting change.


I've only read a little bit of this, despite having it open in a tab for months. It feels hopeful, experienced, and direct, so I hope to read the rest eventually.

anti-ICE demonstration this afternoon

Jan. 10th, 2026 10:53 pm
redbird: clenched fist on an LGBT flag background (angry queer)
[personal profile] redbird
We went to the Boston anti-ICE demonstration today, one of many throughout the United States. Cattitude and I got there slightly after the nominal starting time, and managed about an hour before the cold got to me. Yes, it was above freezing and not windy, but standing still on a large open plaza is chillier than moving around. Adrian came to the demo with some of her comrades from Havurat Shalom, and arrived before we did. The crowd was large enough that we didn't try to find her until we were all preparing to leave.

It was a good-sized crowd, but the acoustics and sound system were abysmal; I could only make out a few scraps of what the speakers were saying.

I wore a winter coat, wool socks, and light-weight long underwear, which was too warm while we were on the trolley.

Weekend protests – SHOW UP

Jan. 9th, 2026 08:45 pm
solarbird: (korra-on-the-air)
[personal profile] solarbird

PROTESTS. SATURDAY AND SUNDAY. LOTS OF THEM. SHOW UP.

Here’s a bunch on the Washington State wet side. All over the place, and I do mean all over. Like Tulalip, and Sequim. Don’t get me wrong, I like Sequim, but it is not a big place. Here’s the list. All kinds of times, all kinds of places.

Sundays are further down but this list isn’t in good date order, idk why. So keep scrolling.

I’m sure wherever you are has some too. Pick one and get out there.

Posted via Solarbird{y|z|yz}, Collected.

full_metal_ox: GIF of Wei Wuxian playing his flute against the full moon, orbited by crows. (Yiling Laozu)
[personal profile] full_metal_ox posting in [community profile] findthatbook
The 1960’s through 1980’s saw so many popular anthologies and compendiums of vampire lore—often assembling pop culture, folklore, classic literature, psychology, and occultism together—that I have no memory now of where I encountered this story.

Content advisory: blood ingestion; colonialism; racism; ableism, eugenics, and medical abuse in a footnote link. Continue. )

If I can track down the book, that might give me a lead as to who originated it (and what their assumptions and agenda might be.)

kesimpta

Jan. 9th, 2026 05:37 pm
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
[personal profile] redbird

The new insurance requires me to use a different specialty pharmacy for the Kesimpta. I asked for a new prescription last night via MyChart, and just had a productive conversation with the pharmacy (Optum):

  • they asked whether I'd been off Kesimpta, because what they can see is that they were sending it to me in 2024, and not last year, so I explained that
  • we went over my list of medications, which was missing at least one thing, and had one I'm no longer taking
  • the doctor wrote the prescription for a 90-day supply, and the insurance will only cover a month of this at a time
  • the doctor sent them a prescription for the initial 'loading" dose, and they need to go back to the neurologist and clarify that

However, so far this has been remarkably efficient: less than 24 hours from me messaging the doctor, to me talking to the pharmacy. Whether the insurance company will cause delays by demanding "prior authorization," I don't know.

a small vigil

Jan. 9th, 2026 01:37 pm
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
[personal profile] redbird
We just went to a small, and surprising brief, vigil on the Common in memory of Renee Good 'and other victims of ICE," organized by MIRA, a local immigrants rights and support group. I'm glad I went, and some good things were said. There will I believe be a larger event tomorrow, but when I can show up for short-notice things on weekday afternoons, sometimes that feels like my job.
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith posting in [community profile] 50books_poc
Signup Post: Reading Challenges in 2026 on [community profile] goals_on_dw

This post lists a bunch of reading challenges for 2026, from one-month to full-year options. It includes a listing for [community profile] 50books_poc along with several other Dreamwidth communities. [community profile] bookclub_dw is fairly new; it works based on host suggestions and member votes, so that's another good way to promote POC books.
solarbird: (korra-on-the-air)
[personal profile] solarbird

JD Vance said – in response to a reporter asking why the FBI and Federal agencies were blocking Minnesota’s investigation into the ICE agent murder of Renee Nicole Good – that ICE agents have “absolute immunity” from state laws.

Screen photograph of JD Vance at the White House podium on CNN with the chyron "BREAKING NEWS | LIVE: VANCE: ICE AGENT WHO KILLED RENEE GOOD 'PROTECTED BY ABSOLUTE IMMUNITY'"

This is not law. This is fascism.

Posted via Solarbird{y|z|yz}, Collected.

new year, new insurance

Jan. 8th, 2026 12:53 am
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
[personal profile] redbird
I gave Capsule my new insurance information, and then had them deliver a prescription.

I will need/use the inhaler, but this is also confirmation that yes, I (still) have prescription drug coverage.

Other than that, not a great day. Fingertips are improving, but I had a sudden nosebleed while sitting quietly on the couch an hour ago. *sigh*
solarbird: (korra-on-the-air)
[personal profile] solarbird

ICE shot a woman, believed but not confirmed to be an American and confirmed not to be a target of their raids, to death in the streets today, murdering her. They are lying about it, calling her a terrorist and lying about what happened. Tricia McLaughlin in particular is lying about what happened. ICE and Tricia McLaughlin have lied many times, irrefutably, in the past, about ICE violence; this is yet another time.

There is third-party video. I have reviewed it several times. It matches reported eyewitness descriptions taken at the scene. In it, the ICE agent shoots while fully clear of any vehicle – having in fact stepped back from the vehicle to make room to raise his pistol – as the vehicle is moving away from him. Eyewitnesses say he shot directly into the vehicle, from the side, at a near-right-angle (at first), which matches what can be seen in the video itself.

Here’s one posting. If necessary, I have a copy and can make more copies if needed. I think these’ll be disappeared if we don’t put them enough places.

The fash are building a lie, a “false narrative.” That’s just extra syllables for “lie,” one that they’ll all pretend to believe. Debunk it at every turn.

ICE murdered a woman in the streets today for funsies and because they were mad about it, and now they’re lying about what they did, while this woman is indeed quite dead.

ETA: The original video has been moved behind moderation and is no longer visible without a Bluesky account. This is a different video from a different angle, unfortunately lacking earlier context.

Posted via Solarbird{y|z|yz}, Collected.

Because I Can

Jan. 6th, 2025 11:10 am
syzygis: (Default)
[personal profile] syzygis
A co-worker told me that, hey!
You can't just write limericks each day!
Taking that as a test,
I've made up the rest.
Not a joke, but who cares what they say?

-K Royka, 1/6/2025 (Moved from Facebook)

Not here

Jan. 5th, 2026 02:24 pm
[personal profile] mjg59
Hello! I am not posting here any more. You can find me here instead. Most Planets should be updated already (I've an MR open for Planet Gnome), but if you're subscribed to my feed directly please update it.

what to do now

Jan. 5th, 2026 09:42 am
solarbird: (korra-on-the-air)
[personal profile] solarbird

Stop using oil.

That’s it. That’s what to do.

Stop using oil. Stop using natural gas, too. Stop. The sooner you can stop, the better. Do what it takes. I don’t know what that is for any individual – for you – but do it.

I know it’s work. I’m not saying, “here’s the easy no impact thing you can do to feel better about yourself,” I’m saying “this is what you need to do if you want to actually do something,” and those are very different statements. It’s a lift, and it’s a heavy lift, but it’s what to do now.

Being work – being difficult – doesn’t change that it needs to happen. Stopping the Nazis in World War II was a heavy lift too. It was work, it was difficult, and it was very literally very very deadly. Millions of people died. Millions more got fucked up for life. Still needed to happen, just like this still needs to happen now. And both the deaths and the fuckery were going to happen anyway.

So stop using oil.

I started saying this literally decades ago, talking about US adventurism in the Middle East. For the money people – the ones who matter – it was then and is now about oil. You want the US out of the Middle East, do everything you can to stop oil consumption. Starve the beast, and eventually the beast will weaken and die. It’s not fast and it’s not easy and it’s not glamorous, but it’s what will work.

Sure, you can talk about the lunatic fundamentalists who want to start Armageddon and end the world to bring back Jesus – fuck, I hate that typing that out is relevant and important – but without the money people using them as muscle, they’re a bunch of flea-picking determinedly-ignorant dipshits feeling up snakes in strip-mall storefronts. Fuck ’em. The reality is that fossil fuel companies are ass-deep in fascism, and always have been, so:

Stop. Using. Oil.

Internalise that. The problem is oil and the people who extract, refine, and sell it. It’s also natural gas and coal and any other fossil fuel, but mostly, it’s the oil.

Stop using oil.

Hit those goddamn breaks, slow down, and then just. Fucking. Stop. Using. Oil.

Some of that’s easy, some of it’s not, and it’s not fast. Lots of people can tell you ways how, including me, but don’t get me wrong – I’m not a saint on this; our furnace is still natural gas. I want to fix that, and we’re actively stockpiling money to do so, but it’s going to take time. It just is. But we’re actually actively working towards it, and we have been for a while.

Not just at home, either. If things go right at the work I don’t talk about online – ever – we’ll be cutting fossil fuel consumption there by another 91% by late this summer.

Thanks to me.

It’s taken ages. We’ve already cut use by about 77%, thanks again – I stress – to my efforts. This new 91% cut will be 91% of what’s left over after all that. It’ll be a 98% cut from where we started, years ago.

If things go right – and there are supplier questions so it might not go right – we’ll be throwing that switch mid-year. For good. It’ll have been years of effort but we’ll have gone from over two thousand gallons of oil a year to

FUCKING ZERO

…with the remaining 2% being natural gas. (We have a path out of that, as well. But the oil comes first.)

There’s nothing unique about my position in this. My accomplishment can be repeated by others, I am just saying.

The end result of not using oil will be much better than what we have now. Some of the intermediate steps will be improvements, too. Some won’t. Some, people just won’t like. Surveys show Americans want to stop climate change but they also want to keep using gas forever and I’m fucking sorry, but that’s just not how reality works.

Until people internalise that they have to stop using oil, I don’t know how much anything else matters.

Step one is stop using oil. (And natural gas.)

It’s also step 10, step 30, step 3000.

You want to do something?

Stop. Using. Oil.

Posted via Solarbird{y|z|yz}, Collected.

Sisterhood

Feb. 18th, 2025 08:43 am
syzygis: (Default)
[personal profile] syzygis
"How are you?" we ask
In the halls, over coffee,
With a glance.

"Keeping busy, getting by,"
We respond, but in corners,
It is different.

Two or three at a time
We pause and acknowledge
Points of pain.

As support falls apart
We support one another
Bonding anyway.
-K Royka, 2/18/2025 (moved from Facebook)

Music

Jan. 5th, 2025 08:34 am
syzygis: (Default)
[personal profile] syzygis
Here, you like this music
When you play your game
Fingers on the keys, hear
How it sounds the same?

You'd rather play your own song,
Move to your own beat.
The notes may bring me pain,
But your heart chords sound so sweet.

-K Royka, 1/5/2025 (moved from Facebook 1/5/2026)

what i’m hearing

Jan. 5th, 2026 02:24 am
solarbird: (korra-on-the-air)
[personal profile] solarbird

What I’m hearing – and hopefully it’s wrong, but it’s what I’m hearing – is that Republicans in Congress know that this is all a hellish dictatorial evil nightmare, but that even now, they won’t cross Trump. One or two will, but not many and not enough. I don’t know that it’s true, but maybe it is.

If you have Republican Representatives or Senator(s), it is your job TODAY to make them fear YOU more than they fear HIM.

This is some serious business last chance shit right here, okay?

Get on it. Good luck.

Posted via Solarbird{y|z|yz}, Collected.

(no subject)

Jan. 4th, 2026 07:31 pm
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
[personal profile] redbird
The skin on the tips of my fingers has been splitting again (as it does in winter even if I try to use enough lotion) and I discovered yesterday evening that my left middle finger and thumb both hurt to touch right now, which makes lifting even light-weight things painful or difficult. Fortunately I don't live alone, and Adrian ct up my salmon for me.

Today has been if anything worse. Mousing Ok, a few tasks are OK, I managed several PT exercises but it has been a hard day. Typing, including comments, is particularly bad.

Annual state of the Brooke!

Jan. 3rd, 2026 03:55 pm
yam: (Default)
[personal profile] yam
It's my annual celebration of Remembering I Have A Blog! It's a far cry from the heady livejournal days where you could be assured of hearing my every passing thought or at least seeing all my blurry photos of flowers, but such are the times.

So, top of the mental list currently is my broken laundry machine. It's like 20 years old so I can't really even fault it, it was cheap to begin with, was in a rental unit with a landlord who didn't give a shit for a lot of that time, and honestly has earned its retirement. But predictable or not I sure don't have any money to replace it, so I'm doing the crowdfunding thing, because I really, really want clean socks and my nigerian prince is not returning my calls.

https://www.gofundme.com/f/dear-internet-please-do-my-laundry

In my wildest dreams I can get together enough money for a machine I can use by myself, which was not the case with the current one, but honestly I'll still be overjoyed if I can just get a new version of the Cheapest Thing In The Store, because again, clean socks. And towels. And not having to figure out how to take a full laundry hamper on the bus in a wheelchair to get to a laundromat. The two closest ones have big stairs at the entrance anyway, a hazard of living in New Westminster, which is not flat. But also sitting in a laundromat sounds like migraine hell. ANYWAY ANYWAY I don't know why I'm going on about why I want to be able to do laundry, like, you know why.

======

But that's this weekend, and it's been a year! What's new?

- I moved! Not far, I ended up buying a place about five blocks from my old place. But it has TWO ELEVATORS and they are quite reliable so far. Also it's a single block from the skytrain, which is somehow like an order of magnitude more convenient than being four blocks from the skytrain. It's on a busy street so it's a bit noisier and the police seem to need to sit outside with strobe lights going every single night, but nothing blackout curtains and pretending the cars are the ocean can't deal with. It's smaller - a one-bedroom instead of two. Greg has the bedroom and I'm out in the living room, and the furniture arrangement sort of says "dollar store that won't pass a fire code inspection" but it works. Also hilariously my cousin lives here, and in the last year of living here I've run into him once. I mean I've seen him more than that because of family dinners, but I am amused by how living in the same building has not affected things at all.

- I have my new wheelchair! I kind of forgot that that was just this year, it feels like I've had it forever, and it's so, so good you guys. It eats hills for breakfast, the battery life is great, and it's so much faster. I still use my old chair for trips to Salt Spring to see pals, or rare occasions when a car trip is the only way to get somewhere, and when I do I realize how spoiled I am, because now the old chair feels soooo slow, and when I got it I remember finding the speed overwhelming a bit. Grateful for both of 'em and glad I got the foldy one first, both because I would never have convinced the ministry to pay for the better one without it, and because if this one develops any problems, I have a backup to use. Wheelchair repairs through the ministry notoriously take weeks in BC, so that's some big time peace of mind that I won't be stranded at home if I need to navigate that. It's weird to think that two years ago I _was_ stranded at home, basically all the time, except for a few excursions for medical appointments that would put me in bed in pain for days afterward. Wheelchair life is so, so much better.

- Greg just turned 15! He's 5'11" now and still as sweet and cuddly as he was as a toddler and still demands that I read him a bedtime story every night. (Which is a couple chapters of a grisly urban fantasy series usually. I would pretend that was an artifact of his age, but nah, he got grisly YA murder mysteries from Tamora Pierce when he was much younger, children are just bloodthirsty in general.) He is so thoughtful and conscientious and I'm so proud of the man he's growing up to be.

- My cats are still cats. Sammy is disturbed by the view from our new apartment; he can see birds now and he is NOT OKAY with the existence of birds. I'm not sure how this wasn't an issue at our old place, but now he keeps mewling disconsolately at them and looking at me like "Uh, fix this?" Ladybug is undismayed by anything, as usual, and spends her day getting me, any visitors, and any inanimate objects she can reach to pet her.

- I'm on a super-strict keto diet for my liver condition and annoyingly it's working really, really well. My lab numbers immediately dropped to 75% of their alarming height. I say annoying because now I have to keep doing it. I miss candy! I'm getting not bad at making keto bread in the breadmaker, though, so at least Cheez Whiz and pickle sandwiches are here to console me. Which is the weirdest health food ever, but hey, it works. Super strict = 20g of carbs a day or less, which would not actually be /that/ hard except I spend most of it on my daily 1/3 of a pudding cup to take my meds in. I've tried the no sugar added ones and they are just so much worse at disguising the taste of the bitter meds, so oh well. There is a lot of heavy cream and lunch meat in my life right now. Why eating a ton of fat is making my fatty liver improve I do not know, but I can't pretend to understand even a tenth of what livers get up to, and honestly I think that is true of most hepatologists as well. Livers: they are up to some SHIT.

- Recently enjoyed Wake Up Dead Man, and watching the two previous movies again. Rian Johnson is just so good at capturing up to the minute assholes, and Daniel Craig is SO GOOD as CSI KFC. I saw Sneakers for the first time this year, and immediately watched it again twice, dang, that was not oversold to me. Also I watched Pacific Rim about 25 times. Giant robot comfort food, what can I say.

- Steam tells me I spent most of my game time on Stardew Valley, again. Comfort food, again, ayup. I have, jeez, 8000 hours of playtime now? But the mod community is so active that it's really a new game every time, along with also being the same game every time. It's a pretty great combination. But anyhoo. Also really enjoyed Blue Prince, Balatro, and especially Dave the Diver, which I 100%ed and then immediately 100%ed again, like, back to back, I just loved it so hard. I'll probably 100% it again later this year when the new jungle expansion comes out. I can't remember if this year was when I started them or not, but also really enjoyed all of the Mosaic series by Mark Ffrench. It's a minesweeper-like puzzle at the core, but each section you solve unlocks some interesting little factoid, so it combines the addictiveness of minesweeper with the addictiveness of going down a wikipedia rabbithole. The tone of the games varies a LOT, from pleasantly benign and amusing (Proverbs) to really depressing (Mosaic Retrospective: 2024, which recaps events of the year and yikes what a year) to grisly (the latest, Mosaic of the Strange, which is an X-files homage) to educational (Mosaic of the Pharaohs,) just in the choice of the genre of factoids you get. I replayed Witcher 3, again, several times, but also this year tried out the Witcher 1 and 2, now that they have mac ports. Witcher 1 was a little painful to play, the interface is brutal, but it has the same voice actors and the same writers, so it was still very worthwhile, damn, they are good at this. Witcher 2 was very much like Witcher 3, just with the plot a little more on rails, and I really enjoyed playing it through twice to see both main pathways. I did some play-testing for the upcoming TR-49, which I highly recommend. You're manipulating reality on a fictional enigma-esque device from Bletchley park using leet-speak. So basically like all Inkle games, impossible to describe but very engrossing.

- Okay I'm running out of steam, I'll probably think of six other things to talk about as soon as I hit post and then forget to post them and see you next year? Or next week, maybe I'll pop on to brag about my new laundry set-up, because holy shit, in the time it took me to post this I'm half-way funded. WHAT THE HECK.

Ahem. If anyone needs me I'll be crying into a cheez whiz sandwich because people are very, very kind. <3

(no subject)

Jan. 3rd, 2026 12:20 pm
gender_euphoric: (Default)
[personal profile] gender_euphoric
 Ugh, that transphobe posted on the add me community again. Does that place even have any mods…

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