Design Research Ethics
Design Research Ethics
Design Research Ethics
Research Ethics
by IDEO
ISBN 978-0-578-16303-1
Design
Research
Ethics
The Second Edition
Contents
Principles
Respect 9
Responsibility 10
Honesty 11
Inclusion 12
Evolution 13
Our Six Ethical Commitments 14
Principles in Action
Planning and Preparation 16
Recruitment and Engagement 20
Research with Kids 24
Gathering Information 25
Co-Design at IDEO 29
Using and Sharing 30
Closing the Loop 34
Caring for Yourself and for Teams 37
Closing Thoughts 38
Gratitude and Acknowledgments 40
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Introduction
Welcome to an Ongoing
Conversation
This isn’t the first book like this. In 2015, design alongside our humility as lifelong
IDEO published the first edition of the learners. We are designers, makers,
Little Book of Design Research Ethics. It teachers, technologists, researchers —
was written to provide design teams, at but never purely objective observers.
IDEO and beyond, with guidelines for We know this.
ethical design research, and to lay the
We are human beings with distinct
groundwork for its future evolution. Now,
identities, experiences, and power
over eight years later, it’s time to evolve.
dynamics that influence our ability
We’ve updated the Little Book with what
to understand other individuals and
we’ve learned since its initial publication,
groups. Ethical design research helps
but we consider this a living document
us acknowledge these fuller contexts to
ever-open to evolution.
create work that honors and includes
In this second edition, we will continue experiences across all individuals and
to provide a common starting place for groups — including and especially those
crucial conversations about ethics in that have been historically overlooked.
design research. We have also added
We believe a better future is for
new sections that reflect our growth and
everyone to design. And it is this little
learning. It is our intention to embody
book’s biggest aspiration to create
the utmost care for our generous research
ethical design research that leads
participants, the design teams that build
us there.
relationships with these participants,
and the clients with whom we engage in Let’s go!
creative partnership. Our work requires
us to navigate the real, messy, human
substance of design research — while
maintaining care for matters of ethics,
legality, and safety. We’d like to especially thank Jane
Fulton Suri, IDEO Partner Emeritus
We acknowledge our position as a
and IDEO’s first Human Factors
global design consultancy — one that
Researcher for her leadership in the
holds power and status, and collaborates
2015 edition of this book, and her
with Fortune 500 companies,
encouragement for a second edition.
government entities, and nonprofits.
We are also people of conscience. We
offer our expertise in human-centered
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This book starts by laying a foundation, based on the sound principles developed
with five principles and guidelines for there. This second edition continues
activating these principles throughout that work and adds inclusion and
the design research process. The first evolution as principles, to reflect our
half of the book shares Principles commitments to multiple perspectives
applicable to anyone interested in design and ongoing learning.
research and ethical practices, and the
The Principles in Action guide us
second half shows these Principles in
throughout a project — planning
Action at IDEO — and it is primarily
our search for insight, recruiting
oriented toward IDEO design teams.
and building relationships with
We share this with others as a helpful
participants, conducting activities
guide, and to support transparent
across both physical and digital
sharing of our practices, but we do know
worlds, communicating what we’ve
it goes into “the weeds,” and recognize
learned, and safekeeping all gathered
not everyone needs such detail.
materials. Although these guidelines
The Principles — respect, are not exhaustive, and will not
responsibility, honesty, inclusion, address all possible situations, we’ve
and evolution — are persistent and aimed to provide meaningful and
fundamental. They are the basis of practical recommendations.
ethical design research. They underlie
To illustrate the principles in practice,
the ability to form trusting relationships
we have included a collection of real
with research participants and
stories from IDEO projects about
communities and to continue to build
challenges we’ve faced and the lessons
trust in IDEO, our design process, and
we’ve learned. We want to share the ways
our researchers. The first edition of the
we continue to learn, so design research
Little Book drew on the work of ethicists
can always be evolving to meet the
and those fluent in academic and
world’s changing needs.
professional research contexts, and was
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Respect
Responsibility
Honesty
Inclusion
Evolution
Return to the table of contents ↠
Principles
Respect
We honor participants and their
expertise, prioritizing their safety,
agency, and needs.
WHAT IT IS WHY IT MATTERS
We believe in the inherent capacities, Respect for our research participants
creativity, and expertise in all people — — their time, stories, perspectives, and
including our research participants. history — is critical to immersion and
We show respect to the information collaboration. Centering respect in
and data they share by listening deeply, relationships helps minimize extractive
clarifying our understanding, and taking interactions with people and their stories.
diligent, confidential notes to help honor
holistic stories and points of view.
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Responsibility
We uphold the self-determined
interests of our participants.
— 10 —
Honesty
We’re truthful, clear, and
timely in communication.
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Inclusion
We seek out, include, and deeply value
the voices and experiences of people
who are often unheard or ignored.
WHAT IT IS
We seek out the perspectives of those assigned to which project — taking care
who have marginalized facets of their with identities and power dynamics that
identities (BIPOC, disabled, low-income, might influence psychological safety for
LGBTQIA+, etc.) in our research — researchers or their participants.
without tokenizing their experiences or
expecting them to represent an entire
WHY IT MATTERS
group to which they belong. We strive
to enable inclusive participation in If we don’t include these perspectives,
research by, for example, interviewing we risk reproducing or worsening
in participants’ preferred language, existing inequity. It is our responsibility
meeting folks in their preferred or safe to include people that have been unheard
space, or providing reimbursement for or ignored as we work toward creating
childcare. At IDEO we make considered a future that belongs to and is shaped
decisions about which researchers are by everyone.
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Evolution
We’ll continue to learn from the
challenges we meet, and as we grow —
and the world around us changes —
our ethical guidance will evolve.
WHAT IT IS WHY IT MATTERS
We commit to an ongoing dialogue As new laws, new technology, and new
about ethical practices in design communities emerge, it’s required to
research. At IDEO, we invite our continually evolve our practices to meet
designers to continuously shape this the changing world. When we commit to
work by carving out time for reflection, learning and changing, we make space
asking tough questions, and critically for our collective and continued growth.
engaging with the content in this
book and on our projects.
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In the rest of this book, we’ll examine how IDEO enacts these
principles of ethical design, illustrated through each phase
of our process. But we know not everyone has time for that.
So read on for an in-depth Practitioner’s Guide, something
we use to give more detailed guidance to our own teams.
(So… if you’re an IDEOer, nope! you’re not done yet —
keep reading!)
If this is where your reading ends, thank you. We wanted
to close with our six ethical commitments — what we
believe always needs to be true when conducting ethical
design research.
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1
Ethical and thoughtful research
outcomes require adequate planning
time. The planning and preparation
phase creates a high-level guide for
crafting research activities that
Planning will inform and inspire. At this
early stage, applying the principles
and Preparation of respect, responsibility, honesty,
inclusion, and evolution lays the
foundation for how research will
influence design.
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WHY IT MATTERS
Ethics questions are often complicated,
so it’s important to work together and
align around best practices. IDEO has a
strong and thriving community, with a
broad range of research experience. We
are stronger and have better chances of
responding to challenges thoughtfully
when we tap into our collective wisdom.
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Story Time
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2
Once we determine our research
goals, we identify the people
we’ll engage. We carefully decide
our “who,” how best to connect
with them, and how to design a
relationship with reciprocity and
Recruitment care. At this stage, our principles
inform how we initiate relationships
and Engagement with participants, centering trust
from the very beginning. Through
recruitment and engagement,
we lay the foundation for design
that incorporates diverse
perspectives, by intentionally
including individuals and groups
who have been historically
overlooked or marginalized.
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Might the participant’s participation Are our research and recruiting methods
harm them in any way, in the future? sufficiently accessible?
— 22 —
Story Time
Over the course of nearly ten years, IDEO worked to develop a new
voting machine for one of the nation’s largest voting jurisdictions.
A key outcome of this important project was that the machine be
accessible to everyone.
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Special Section
At IDEO, some of our projects rely on know how children may feel later about
the expertise of kids. While the same a decision to share their information.
ethical principles apply to our work
with children, this research also means
OFFER OPTIONS
considering the unique needs of young
people under 18 and our responsibility Prioritizing the boundaries of children
to care for them. and their caregivers, and recognizing
the unique closeness of parent–child
relationships, we provide choices about
CONSIDER CAPACITY
how families participate in research. For
Kids’ developing minds function in example, for both remote and in-person
wonderfully different ways, often research, we let families know that
yielding compelling insight. These parents have the option to remain in
different cognitive capacities also create the room with their child throughout
challenges for informed consent: younger the session. While many families are
people may have greater difficulty than comfortable with their child participating
adults in understanding the goals of solo, we make sure to never communicate
our research and how their information our preference one way or another.
will be used. We seek to honestly and
respectfully communicate with children,
APPLICATIONS TO OTHER
preserving their agency in the research
POPULATIONS
process as much as possible, while
recognizing their different capacities. Considerations for working with kids can
In addition to obtaining informed written be extended to any other population —
consent from caregivers, we obtain each person is unique and deserves our
verbal assent from children before we special attention. In particular, there
initiate research activities. We use are other groups we work with that may
developmentally appropriate language to have different capacities. For example,
explain to children what we’ll do and how research with healthcare patients often
research activities help us to design. involves working with participants who
span the spectrum of neurodiversity.
Differences in cognitive capacity
SHARE CONSERVATIVELY
amongst patients can present challenges
Because children do not have full in the informed consent process.
capacity to consent, we’re especially While it’s important we learn from the
cautious about how we use and share communities we design with and for,
their information. As in our research it’s equally vital that we seek expertise
with adults, we protect children’s in these scenarios. Such research takes
privacy and raw data. Even when extra time and resources, and this
children’s caregivers are open to additional preparation should be
sharing more widely, we default to scoped into the project.
maintaining anonymity. We don’t
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3
We learn from our participants by
observing and engaging actively
with them — in the real world and the
virtual one. At this stage of research,
Gathering we are considering the whole person
and the context in which they live
Information — valuing their actions, beliefs,
thoughts, and feelings as well as
their limits.
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The vast amounts of information people now leave behind online provides new
opportunities for learning. A compelling current approach involves scraping and
analyzing posts from social media websites and other online platforms to inform
insights. Standards and laws for using such information are constantly evolving,
making it especially important to proceed carefully.
Basic recommendations for gathering and using social media and other “found”
online data include:
• Stay informed about laws. The legality of scraping data varies across
platforms and geographic locations. Check the policies of the given
platform, and consult your legal team when uncertain.
• Preserve anonymity and privacy. Regardless of the audience, always
separate usernames from posts when sharing findings. Do not share posts
outside of IDEO and the client team. Posting something online doesn’t
imply consent for sharing identifiable information in other contexts.
• Consider whose voices are included (and left out). Constraints
on access to digital platforms and cultural factors influence who
participates and how they express themselves online.
• Return to the principles. Given ethical standards for social media
analysis are evolving, returning to our fundamental ethical principles
may help guide decisions where rules have not been written.
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QUESTIONS TO CONSIDER:
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Story Time
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Special Section
Co-Design at IDEO
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4
As we make sense of the information
we’ve gathered — synthesizing
observations, analyzing data, and
sharing insights —our principles
guide how we communicate about
Using our participants and interpret their
voices and experiences. Upholding
and Sharing a trusting relationship at this
stage means being selective in the
information we share and centering
accuracy in how we represent it.
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When health information arises in our research, IDEO complies with HIPAA
regulations, even when working with clients or in territories where such regulations
are not in effect. This means that health information must never be connected to the
identity of the research participant. While some of our projects directly focus on
learning about health conditions, others surface health information unintentionally.
For example, in concept testing a new toy, we may end up learning about a child’s
disability, or in designing a new athletic recovery product, we might learn about
participants’ histories with chronic pain, injuries, and mental health.
Whether information about a participant’s health surfaces in a planned or
unintentional way, it’s crucial we keep health information separate from the
participant’s identity. We can share the story, but it should never be connected
with their name (even first name), photograph, or any other information that could
identify them. As our work becomes increasingly facilitated by digital tools and
platforms, we always must vet whether new tools are HIPAA-compliant.
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QUESTIONS TO CONSIDER:
Are we honoring participants’ dignity Are we doing all that we can to protect
by speaking about them and their the privacy of our participants, taking
experiences as though they’re in the into account the specific context of how
room with us? their data will be represented?
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Story Time
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5
After we’ve wrapped up a phase of
research or finished a project, our
principles guide how we maintain
relationships with the people who
informed and inspired our work.
Closing Following up with participants after
research ends — even in small ways —
the Loop is a chance to show respect and build
trust. It’s also a chance to practice
reciprocity by showing participants
their impact on the work.
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QUESTIONS TO CONSIDER:
Are we appropriately crediting those who Whenever possible, are we sharing back
should be acknowledged? the work we’re able to with participants?
What is our plan for sharing back, and
Have we done all we can to leave the how will we hold ourselves accountable
participants and communities we’ve to this?
worked with better than we found them?
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Story Time
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Special Section
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Closing Thoughts
In this new edition of the Little Book Honoring the principles of respect,
of Design Research Ethics, our updates responsibility, and honesty included
reflect a desire to further center care in the first edition, we’ve added
in our relationships with participants, the principle of inclusion to reflect
get more specific about important our commitment to elevating the
topics — like recruitment, co-design, and perspectives of people who are often
closing the loop with participants — and unheard or ignored. We have included
bring forward growing awareness and the principle of evolution to reflect our
understanding of diversity, equity, and commitment to remain open to change,
inclusion in design research. making corrections and learning more
as necessary.
We know that navigating ethical
questions can be challenging, that We hope the guidance in this book,
we aren’t always certain, and that and the conversations it stimulates,
standards for new approaches such as help bring us into more trusting and
social media analysis and the use of AI reciprocal relationships with research
are still developing. In these scenarios participants, clients, and communities.
— where rules and standards have yet We’ll keep learning, remaining honest
to be written or our collective wisdom about when we need to change, and
is evolving — ethical principles can embracing new wisdom.
help guide us.
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Thank you to our Thank you to Jane Fulton Suri, Dorinda von
Stroheim, and Rachel Wong, who authored the first
editors, reviewers, edition of the Little Book of Design Research Ethics
in collaboration with a number of other IDEOers.
and content creators
This edition was written by Leah Kandel, Lucy
King, Marta Cuciurean-Zapan, Megan Bontempo,
Rachel Young, and Tracy Joyner with the blessing
of Jane Fulton Suri. It was reviewed by Emily Mo,
Kaii Tu, Milan Gary, Shelli Reeves, Zena Barakat,
and Dan Perkel.
Dr. Talya Brettler provided guidance about
research focused on health conditions or patients.
Jeremy Sallin gave legal counsel. Dr. Lisa Lehmann
inspired us through a conversation about bioethics.
Layout by Yura Park. Production design by Rubani
Shaw. Illustrations by Juan Astasio Soriano. Editing
by Stuart Getty.
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