How Does It Feel To Have A Disturbed Ide
How Does It Feel To Have A Disturbed Ide
How Does It Feel To Have A Disturbed Ide
From Department of Psychology, Aarhus University, Aarhus, Denmark (C. R. J.); and Clinic for Personality
Disorders and Suicide Prevention, Aarhus University Hospital, Skejby, Denmark (R. B.).
Address correspondence to Prof. Carsten René Jørgensen, Department of Psychology, Aarhus University,
Bartholins Allé 11, DK-8000 Aarhus C, Denmark. E-mail: [email protected]
40
PHENOMENOLOGY OF IDENTITY DIFFUSION 41
disturbance is also one of the qualifiers for the specified borderline pattern
in ICD-11. Similarly, the alternative DSM-5 model for personality disorders
lists identity disturbance as one of only four central criteria for pathology in
personality functioning in general. Identity disturbance is thus elevated from
a feature of BPD to a core construct in all personality disorders. In addition
to this, and more specifically, “markedly impoverished, poorly developed, or
unstable self-image, often associated with excessive self-criticism, chronic feel-
ings of emptiness” (APA, 2013, p. 766) is also one of the essential diagnostic
criteria for BPD in the alternative DSM-5 model. In the DSM-5 Level of Per-
sonality Functioning Scale, identity problems are constructed as dimensional,
ranging from little or no impairment with accurate self-appraisal to extreme
impairment with virtual absence of sense of agency, distorted self-image, and
confused boundaries between self and others. Kernberg’s theory of personal-
ity organization designates severe disturbance in identity functioning as the
crucial criterion for differentiating severe personality disorders or borderline
personality organization from milder forms of personality disorders or neu-
rotic personality organization (Kernberg & Caligor, 2005). Identity distur-
bance is highly important in differential diagnostics, including the difficult
differentiation of BPD from bipolar disorder (Bayes & Parker, 2019, 2020).
But what exactly does it involve to have a severely disturbed identity, how
is it experienced by people with BPD, and how does it affect deeper aspects
of their daily lives? Questions such as these are highly important and at best
only incompletely answered.
NORMAL IDENTITY
IDENTITY DIFFUSION
PREVIOUS STUDIES
So far, the predominant view has been that because of “lack of insight into
themselves” (Wilkinson-Ryan & Westen 2000, p. 539) or “limited psychologi-
cal mindedness” (Neacsiu et al., 2015, p. 357), people with PD, particularly
BPD, are unable to provide valid information about complex aspects of their
inner psychological life, such as identity. This view is not adequate. In our
view, it is highly interesting, clinically relevant, and important to consider and
respect how severe identity disturbance is actually expressed in the subjective
experience of people with severe PD, including BPD. Our need for deeper
insight into the phenomenology of identity diffusion cannot be adequately
met with the use of standardized questionnaires and therapist ratings of BPD
patients’ identity problems from an outside perspective alone—we also need
the insights that can be gained from well-structured conversations with people
living with BPD.
Very few studies have presented empirically based in-depth descriptions of
the phenomenology of identity and severe identity disturbance. To some extent,
this scarcity can be explained by the significant difficulties in operationalizing,
quantifying, and capturing the essence of identity and identity diffusion. How-
ever, qualitative studies can enable a deeper and more nuanced understand-
ing of the phenomenology of identity disturbance—how identity diffusion
manifests itself in the subjective experience and inner life of people with PD.
“Identity and other aspects of human subjectivity should not be excluded from
psychology and psychiatry just because they are difficult to operationalize and
research using traditional quantitative methods. To understand identity, we
need to focus on subjective experience” (Jørgensen 2018, p. 108). We need
qualitative studies focusing on more subtle aspects of individual subjective
experience. As argued by Wurmser (2019, p. 16), psychotherapy is the art of
the specific; scientifically, universal laws and concepts are highly important,
but when it comes to our work as psychotherapists, these universal theories
and concepts are empty if they are not filled with specific content related to
human subjective experience.
Despite the important role of identity diffusion in PD, qualitative research
on this experience, including how it manifests itself in patients’ subjective
lives, remains sparse. In fact, to our knowledge, only two studies exist. In one
study, thematic analyses of life story interviews were used to describe elements
of identity disturbance in five women with symptoms of BPD (Agnew et al.,
2016). A second study, of the self-image of patients with BPD (n = 12), using
a structured interview focusing on self-perception, also has some relevance
in aiding our understanding of identity diffusion. In this study, BPD patients,
not surprisingly, showed difficulties with describing themselves coherently and
their self-descriptions were superficial (Dammann et al., 2011).
The main focus of this study is how severe identity disturbance is manifested
in the subjective experience of the self and of the self in relation to others in
women diagnosed with BPD. In light of the interpretive phenomenological
analysis (IPA) of 16 qualitative in-depth interviews (see below), we address
PHENOMENOLOGY OF IDENTITY DIFFUSION 45
the following question: How do young women with BPD describe the way
identity diffusion is manifested in their subjective experience, behavior, and
daily life? Certain important related questions—such as the historical and
psychological etiology of identity diffusion and whether identity disturbance
is a unitary phenomenon, distinguishes BPD from other personality disorders,
and is related to general level of disturbance in patients with PD—are not
addressed in this study.
To our knowledge, the study presented here is the first idiographic study
concerned with the particular identity-related problems in people with BPD
that aims to unfold how identity diffusion finds expression in the subjective
experience of individual BPD patients. We attempt to demonstrate the existence
of specific experiences and manifestations of identity diffusion, not incidence.
The main objective is to present nuanced descriptions of how identity dif-
fusion is experienced by individual patients with BPD, not to offer explana-
tory accounts of identity diffusion and its etiology. Compared with earlier
qualitative studies (see above), our study is based on fully diagnosed BPD
patients (not just persons with BPD features; cf. Adler et al., 2012), and our
main focus is on the specific manifestation of identity diffusion in the subjec-
tive experiences and daily lives of the participating women, not just on how
aspects of identity diffusion might manifest more indirectly in certain aspects
of the content, emotional valence, or (compromised) structure of life story
interviews with a much broader focus on overall life stories and life story
chapters (cf. Adler et al., 2012; Lind et al., 2019). Narrative perspectives on
identity have made important contributions to our understanding of selected
aspects of identity, but in our view, identity and identity diffusion cannot be
reduced to self-narratives and life stories. We also need studies, such as the one
presented here, that focus specifically on deeper and more structural aspects
of human identity and identity diffusion.
PARTICIPANTS
Sixteen adult women participated in the study, mean age 27.6 years (SD = 6.2
years, range 21–43 years). To rule out possible gender- and age-related dif-
ferences in how identity diffusion is manifested, we decided to include only
younger women in the study. All patients were recruited from the Clinic for
Personality Disorders and Suicide Prevention, Aarhus University Hospital, and
were diagnosed with BPD. Diagnoses were based on SCID-5 interviews (First
et al., 2017) conducted by experienced psychologists systematically trained and
with extensive experience in the use of the interview (for an earlier study of the
reliability of SCID-5 diagnosis from the clinic, see Jørgensen et al., 2013). All
patients met the DSM-5 BPD diagnostic criteria for BPD, including the BPD
criteria for disturbed identity; two patients had a comorbid narcissistic person-
ality disorder, and three had salient narcissistic traits (meeting four criteria of
NPD). Possible comorbid symptom disorders were not systematically assessed.
Based on the normal clinical assessment conducted when patients enter the
clinic, two of the participants were diagnosed with recurrent moderate depres-
sion, one with obsessive-compulsive disorder, and one with moderate cannabis
46 JØRGENSEN AND BØYE
use disorder. Participation was voluntary, and all patients had the right to with-
draw from the study at any time during the course of the study. All participants
were individually informed (verbally and in writing) about the study objectives
and signed an informed consent form. Because no intervention was involved,
the study did not need approval from the Danish Scientific Ethical Committee.
However, the study was registered and approved by the Danish Data Protec-
tion Agency, Central Denmark Region (Registration no.: 1-16-02-217-20).
All participants were asked to answer two questionnaires designed to
assess identity disturbance: the Inventory of Personality Organization (IPO;
Lenzenweger et al., 2001) and the Self-Concept and Identity Measure (SCIM;
Kaufman et al., 2015); both instruments have good psychometric proper-
ties. The SCIM is a 30-item self-report measure developed to assess clinically
relevant aspects of identity disturbance, the IPO is an 83-item questionnaire
developed to assess aspects of personality organization, including level of
identity diffusion. The Symptom Checklist-92 (SCL-92) questionnaire was
administered to assess general symptom level (Derogatis, 1983). The SCL-92
is a well-established 92-item self-report questionnaire developed to assess
symptom level on various dimensions. The three questionnaires were admin-
istered to provide a preliminary assessment of the general levels of disturbance
and identity diffusion in the participating patients, based on quantitative
self-report measures.
METHOD
All interviews were conducted by the first author using a semistructured inter-
view guide. Based on comprehensive analyses of the identity concept and the
concept of identity diffusion (see Jørgensen, 2008, 2018, 2020), prior efforts
to delineate the central aspects of identity diffusion (Akhtar, 1984; Kernberg &
Caligor, 2005), the conceptualization of identity disturbance in DSM-5 (APAs,
2013), and existing empirical studies of identity diffusion (Dammann et al.,
2011; Wilkinson-Ryan & Westen, 2000), we constructed an interview guide
with eight main questions and a number of possible follow-up questions, all
of them focusing on what can be conceptualized as the main manifestations
of identity disturbance. In simplified terms, Akhtar’s (1984) subcategories of
identity diffusion were part of the inspiration for questions 1–5 and 8; the
DSM-5 conceptualization of identity disturbance was integrated into ques-
tions 1, 2, 5, and 6; the analytic subcategories of identity diffusion presented
by Wilkinson-Ryan and Westen (2000) are part of the theoretical and empiri-
cal background of questions 5–7; and so forth (see Table 1; the full interview
guide can be requested from the first author). Most of the existing conceptions
of identity diffusion are relatively abstract and general in nature, and thus this
study could also be interpreted as an effort to specify and understand what these
conceptualizations refer to more specifically—or how they are manifested—in
the subjective experience and lived lives of women diagnosed with BPD.
Our primary intention was to construct an interview guide based upon
open-minded questions about the participating patients’ self-concept and
identity-related problems in their daily lives, communicating genuine interest
PHENOMENOLOGY OF IDENTITY DIFFUSION 47
and curiosity while at the same time asking for specific examples of how their
identity diffusion and compromised self-concept are manifested in subjective
experience. We asked the women how they would describe themselves, how it
feels to be in their shoes, and how they feel when they are, respectively, alone
and together with others. We also tried to get an idea of how the participat-
ing women see themselves in relation to social groups (e.g., as well-integrated
members, socially marginalized), what (if anything) they see as important in
their lives and how they imagine their future (if they do).
Not all significant facets of identity diffusion can be elicited to the same
degree through quick and formal questioning, and the interviews were con-
ducted as open-ended conversations focusing on identity-related aspects of
the patients’ subjective experience of themselves and relationships with others.
This open conversation format is well suited for establishing a good rapport
with informants in general and with BPD patients in particular, which is a
precondition for the kind of trust and psychological contact that is necessary
for the participants to allow us to gain insight into more intimate and vulner-
able aspects of their inner subjective life. Our goal was to establish a subject–
subject relationship, where the interviewer is eager to understand “how it is
48 JØRGENSEN AND BØYE
to be you” (the patient) and how a disturbed identity manifests itself in the
patient’s subjective experience. Participants were continually asked to offer
specific examples of how they had experienced selected aspects of identity
diffusion in various situations.
Participants were informed that the interview would take up to 2 hours
and focus on how they experience themselves; how they feel when they are
alone or with other people, respectively; how they see themselves in relation
to social groups; and, finally, how they experience selected aspects of their
sexuality. The participants were free to end the interview at any time and
could ask for a break if needed. No interview was ended prematurely; one
participant asked for a 5-minute break. Interviews were audio-recorded and
transcribed verbatim. Average duration of the interviews was 2 hours and 5
minutes (SD = 19.2 min., range 95–155 min.).
DATA ANALYSIS
All interviews were analyzed by the first author, first case by case, then across
cases in a search for any recurrent or related themes and common experiences
associated with identity and identity disturbance. This was done in accordance
with the IPA method. IPA represents an approach to qualitative inquiry and
is an elaborated method for structured content (micro)analysis of qualitative
data, including semistructured qualitative interviews as used in this study.
Methodologically, IPA is “concerned with the detailed examination of human
lived experience. . . . in a way which as far as possible enables that experience
to be expressed in its own terms rather than according to predefined category
systems” (Smith et al., 2009, p. 32). The study’s methodological integrity is
thus supported by a hermeneutic and phenomenological approach in line with
our intention of getting as close as possible to the subjective experience of the
participating women diagnosed with BPD.
IPA has six consecutive steps (see Smith et al., 2009). First, one reads,
rereads, and listens to the interviews case by case in order to immerse oneself
in the patient’s narrated experiences and to obtain an in-depth understand-
ing of the material while sorting the material into general categories such as
“feeling disconnected from social communities” or “I don’t know who I am.”
In this initial phase, the researcher proceeds slowly and tries to avoid the pro-
pensity for quick and superficial interpretation of the material. The goal is to
access the inner world and subjective experience of the individual participant.
Step 2 involves a closer reading of the transcript with the aim of producing
a comprehensive set of exploratory notes, reflections, and comments on all
relevant aspects of the interview. The primary aim in this phase of the analysis
is to capture and crystallize key aspects of the content while staying close to
the patient’s explicit meaning. Each utterance is looked at separately: What
is the participant saying here that is of relevance for her experienced identity
problems? (Smith et al., 2009, pp. 82ff).
The main task of Step 3 is to capture the essential content of the material,
searching for and naming recurrent themes and experiences in each individual
case. In this phase, the volume of detail in the transcript and exploratory
PHENOMENOLOGY OF IDENTITY DIFFUSION 49
notes is reduced substantially, while the complexity of the material and the
grounding of the named themes in the exploratory notes and in the transcript
are maintained as far as possible (Smith et al., 2009, pp. 91f). Step 4 involves
searching for connections and commonalities across emerging themes in the
individual interview. In this process, some of the themes extracted from the
preceding steps are integrated into larger superordinate themes, while others
are discarded, renamed, or reframed. Step 5 involves moving on to the next case
and successively repeating the first four steps for each of the sixteen interviews.
In accordance with IPA’s idiographic perspective, all participants are treated
on their own terms in an effort to do justice to their respective individuality
or uniqueness. Finally, in Step 6, the researcher looks for common themes and
experiences across all 16 cases included in this study. Again, some themes are
discarded while others—the most frequent, most potent, and most intimately
related—are integrated, to some extent relabeled, and given descriptive names
that capture the essence of the theme and subjective experience (Smith et al.,
2009, pp. 101ff). This is a more creative and interpretative task, which involves
moving back and forth among all the cases, including efforts to understand one
participant’s statement(s) in light of related experiences formulated by other
participants. Throughout the process, all formulated themes are grounded in
specific excerpts from the transcribed interview material in order to stay as
close as possible to the phenomenology of the participating patients’ subjec-
tive experience.
To illustrate the analytic process, the following is a sample statement by
one of the participants, who speaks about her self-understanding: “Well, we
all have different roles that we play in interactions with other people. You’re
one person with your grandmother and another with your friends. For me, it
has a lot to do with how I feel. If feel . . . good, I am . . . , no, if I feel bad, I am
the funniest person in the world. I take on the role of class clown, cracking
one joke after another, using it as a defense mechanism.” In the first analytic
phase, we note that the interviewee’s self fluctuates, depending on who she
is with and how she feels. In the next phase, the interview fragment is clas-
sified into two different categories: “fluctuating self-concept” and “façade as
defense mechanism.” In concluding our analysis of this particular individual,
the utterance is classified primarily into the category of “I don’t know who I
am; fluctuating self-concept” and secondarily into the category of “fluctuat-
ing self-appearance.” In the final cross-case analysis, the fragment is included
in two overarching analytic categories: “I don’t know who I am; fluctuating
and disintegrated self-image” and “‘Fake it till you make it’; using masks and
façades to stabilize the self” (see below).
RESULTS
on the IPO scale for identity diffusion was 78.4 (SD = 10.2), demonstrating
a very high level of identity disturbance (Lenzenweger et al., 2001). Similarly,
the average scores on the SCIM scales for identity disturbance and lacking
identity were very high: 46.8 (SD = 13.7) and 32.4 (SD = 8.5), respectively
(Kaufman et al., 2015).
IPA yielded nine superordinate themes. Most of the participants endorsed
and contributed to all nine themes, in a few cases only implicitly (e.g., not
explicitly saying they feel lonely but appearing to demonstrate the feeling
in telling us they have no or very few friends and would like to have more
friends but do not know how to accomplish that). A few of the women made
so few statements about individual themes that we refrained from classifying
them (see Table 2). In two cases, the participant said explicitly that she did
not experience a specific problem. One woman told us that she felt very well
integrated in a social community (Category 4). Another women stated that
she did not experience any problems related to her sex life (Category 9). In
the following, we will describe the nine categories derived from the interviews.
2: Using façades 14 1 1
3: Self is broken 16
4: Self does not fit in 13 1 2
5: Inner emptiness 11 5
6: Don’t know what I want 13 2 1
7: Contact to stabilize identity 13 1 2
8: Relational paradox 15 1
9: Sex as self-regulation 13 2 1
Note. Explicitly present: n = number of participants explicitly articulating this as a subjectively perceived problem.
Implicitly present: participants implicitly communicating this as a problem. Not present: participants explicitly
denying that this is a problem area. Insufficient data: data on the theme are inconclusive/cannot classify.
PHENOMENOLOGY OF IDENTITY DIFFUSION 51
of a hidden self, but at the same time they felt unable to find or get in contact
with this inner core or self: “Every part of me is hidden, and because they
are so well hidden I don’t know, who I am” [W3]. However, most of them
implicitly or explicitly appeared to agree with this woman when she said, “I
have never known who I am” and that she does not know “how it feels to
know who I am” [W13].
Some of the women were primarily preoccupied with not knowing who
they are, in some cases not knowing who they are behind the different masks
or façades they present to others and to the world in general (see Category 2).
This is an experience of being defined by and always accommodating others to
the extent that they do not know or have lost track of who they “really are.”
Others were more concerned with how their self and self-experience fluctuate
in ways that are highly confusing and dependent on either their momentary
and highly transitory emotional state or whom they are with, that is, their
immediate social context. One of the women said: “It is really difficult for me
to answer that question [about who I am], because I feel it is so dependent
on the mood I’m in and on the situation and the people around me” [W12].
Several participants reported that their momentary self-understanding is highly
dependent on their immediate mood: “I am my feelings” (or the feeling that
dominates in the here-and-now), and “when I am in a good mood, I’m unable
to remember that I felt bad, and vice versa” [W4]. “When you’re really con-
fused in your head about who you are, it can be like, well, this is how I feel
right now, so this is just how I am at the moment. It’s like, I am the feeling, if
you can put it that way” [W16]. One of the women, Katrine (name changed),
expressed her difficulty in grasping who she is as follows:
When I was in treatment for alcohol abuse, my therapist asked me, well, who are you?
I looked at him, really puzzled, and I said, “Well, who do you mean? Is it Katrine as in
when I’m with my parents, or Katrine as a friend or as a mother? I mean, which one of
them are you talking about?” He looked at me, smiled and said, “If you are just you,
who are you then?” And I said to him, “Well, she doesn’t exist.” I always take my cues
from the people around me, so when I’m with the Rolex club, I am the Rolex snob; if I
am with the alcoholics in an AA meeting, I’m the girl from the park bench. [W3]
I don’t know who ‘myself’ is” [W14], which in some cases seems related to a
subjective experience of inauthenticity. For most of the participants, the ques-
tion “Who am I?” primarily causes confusion, as illustrated in this statement
from one of the women: “Often, I actually feel that I am me, and then I have
this feeling that ‘this isn’t me, I’m just talking, doing what I’m supposed to do’”
[W9]. A few of the participants reported that they try to anchor a sense of self
in something outside the self, such as a social group, school/academic marks,
weight, or BPD diagnosis: “A big part of me is my borderline, if that makes
sense . . . If my diagnosis were taken away from me, I think my world would
collapse, because I have built this identity . . . based on being borderline . . . so
I would be totally confused . . . because I use it as a kind of excuse, if I feel
bad or I have mood swings, ‘well that’s because I am borderline’” [W16]. As
one of the women put it after describing one of her many failed attempts to
find her own self by engaging in (short-lived) hobbies, projects, and activities:
“I’m always looking for something that might be me” [W11]. Unfortunately,
she fails again and again.
the women is completely convinced that her boyfriend wants her to be “the
innocent housewife,” and she explained how she “can take on this role, buy-
ing potted plants and baking cookies” [W1], knowing all the time that this
is not her, that she is simply playing a particular role to keep her boyfriend
happy and make him think that “she is nice.” Another participant describeed
how she “loves [her] best defense mechanisms, which are humor, irony, and
sarcasm. It works. Instead of being unsociable, I put on a façade of carefree
humor” [W3]. Others “just have to like me. Then it doesn’t matter who I am
or what I am.” All the women seemed to know that the façade is only skin-
deep, a mask used to hide what is (or is not) inside them:
I have many different façades. . . . Behind them there is chaos, not knowing who I am
or how you’re supposed to act . . . on the outside, I have no problem appearing calm, in
control and completely integrated. But inside, I am going 150 miles per hour, trying to
figure out, am I doing the right thing, am I giving the right answers? [W3]
Afterwards I feel I wasn’t really there . . . a feeling of not really being myself around my
friends. . . . It’s like, I pick up characteristics. When I see, well, someone is doing this and
it looks right, so if I do the same, it might somehow work for me too, . . . but I still get
this sense of, that’s not me, and so it doesn’t feel real at all. [W6]
In some cases, this makes the person feel like an imposter, always lying
to other people and being in the world “on autopilot” or “leading a double
life”: “I am not really ‘there,’ the way I would like to be. . . . Again, it’s just
that I just do what they do, so it doesn’t feel real” [W6].
54 JØRGENSEN AND BØYE
ever like me, I am too defective to be here. . . . I am like a broken bucket with a
small hole in the bottom where water keeps running out, because something is
missing, . . . and I have no idea what might plug that hole” [W10]. She reflected
on how she might understand and heal her sense of the self as defective:
Something is missing [inside], it’s this feeling that if there was ‘something more,’ I would
be happy. I have often thought, if only I had a boyfriend, I would be happy, or if I did
this or that, then I would be happy. Well, I’ve tried these things but had to realize that,
no, that wasn’t it either. [W10]
“I know that people share something, they do things together and have some
kind of connection, . . . while I have always felt I was on the outside of all that”
[W6]. One of the women said, “I always feel left out. . . . I am the one that’s
on the outside, I will never feel that I am inside, part of something, . . . there is
something about me which means that I will never be part of it [the group]. I
will always struggle, trying to be accepted. But it will never ever be enough”
[W15]. In some cases, the women related their feelings of social exclusion to
what they see as the social or psychological deficits of their self: “I’m unable
to talk about myself, except with my therapist. If somebody asks me how I
feel, what should I answer? I don’t know what to say to people. I don’t know,
I fucking don’t know what to say” [W15]. Some of the women explained
that they have developed an ability to (appear to) adapt to various social
settings by mimicking others and trying to be and do like them, but at the
same time feeling they are “not really there,” just playing an adapted social
role. And when the attempt fails, they back out: “I try to be a part of it, but
very quickly I give up, . . . and then I withdraw” [W12]. Others are so afraid
of being excluded or left out that they actively avoid becoming part of social
communities in the first place: “I have always been the lone wolf—in school,
in high school, at the university. It’s the exact same role that I play. It’s a role
that I choose . . . in order to avoid feeling sad and being rejected” [W15].
into a black void” [W16]. Another woman said that feeling empty inside “is
the most familiar feeling in the world to me. It’s an empty hole, a hole in my
stomach, . . . it’s like my basic emotion” [W5]. In addition to feelings of inner
emptiness, some of the women experience a profound and pervasive sense of
meaninglessness, illustrated in this quote from one of the participants: “There
ought to be a better reason for my being in world than just having borderline,
going to group therapy, and trying to ‘get better.’ When I get old, I’m going to
die anyway. It all seems so empty, so pointless” [W5]. Several women spoke
about intense feelings of boredom or fears of appearing boring to others, also
related to feelings of inner emptiness.
All the participants felt lonely, also in the presence of others, even sig-
nificant others. “I feel like I am inside a bubble, . . . that there is this distance
between me and other people. . . . I feel all alone in the world, even when I am
with others; . . . deep inside, I feel alone among all these people that I spend
my time with” [W8]; “I am always alone, even when I’m with a thousand
people. . . . I don’t let anyone get close to me” [W3]. In some cases, perceived
meaninglessness and feelings of personal insignificance are closely related: “I
feel completely insignificant when I am with others, . . . that I have nothing to
say—and I keep asking myself, why am I here, what use am I?” [W5]. One of
the participants related her loneliness to her need to keep others at a distance
and being unable to be “herself” in relationships: “It can be a very lonely feel-
ing, this constant need to check these barriers and accommodate others—and
never really feeling accepted. That makes me feel even more lonely than when
I’m just alone, because you realize that you’re unable to relax and be yourself
[in the presence of others]” [W10].
Some of the women also articulated feelings of wasting their time, doing
things that do not make any sense to them. One of them said, “I feel I’m
wasting my life. . . . I just try to fill up my life with things that make sense,
because nothing in my life really makes any sense. . . . this sense of everything
being meaningless” [W9]. Another participant articulated a “feeling that I am
wasting my time, like everything is just going in circles and I begin to worry
that time is just running out, and all the things I haven’t accomplished, and
all the times I have just gone round and round in circles and started over
again” [W6]. Finally, approximately half of the women described desperately
trying to handle or escape these painful feelings of emptiness and loneliness
by taking drugs, drinking excessively, cutting or engaging in other kinds off
self-destructive behavior, binge watching TV series, excessive physical exer-
cise, or being constantly on the move: “I am just empty. . . . I get into my car
and drive, drive, drive, listening to music, just to feel something” [W13]. This
woman has crashed her car several times.
for what is good and bad and what one likes and does not like. These problems
are intimately interrelated in the sense that deficits in one’s inner horizon of sig-
nificance mean a lack of access to stable inner criteria for making choices and
difficulty sticking to one’s choices. As articulated by one of the participants:
“I can’t figure out what I want. When I am alone, I feel completely unable to
make decisions” [W12]. Similarly, one of the other women said, “When I have
to make decisions concerning what’s right, what’s important in a situation
like this, I have so many doubts, and everything gets mixed up. I can’t make
up my mind, and usually I end up asking somebody else ‘what do you think
is best, what should I choose?’ Because I can’t do it myself; . . . nothing seems
more important to me than anything else” [W6]. All the participants but one
described closely related experiences and challenges: “It’s very confusing not
to have this unifying thread or principle in your life, like who am I, and what
do I want. It makes it very difficult to make plans” [W10].
One way or another, all the women have a hard time thinking about their
own future. Some of them talked about being very spontaneous—one could
also see this as being impulsive, often in potentially self-destructive ways,
dictated by the heat of the moment:
Where do I see myself in 5 years? I don’t see myself anywhere, I’m just trying to live
in the moment. Because I still haven’t decided whether I’m going to be here tomorrow
[or take my own life], but I am here today. . . . I don’t have any long-term plans. I know
what I can handle today, I don’t know what I will be able to do tomorrow. I know that
I didn’t sleep last night, so today is going to be a long and tough slog. Maybe I’ll sleep
tonight, then I will have a terrific day tomorrow. Long-term plans, no thanks, . . . that
way I won’t be disappointed. [W3]
doing today” [W1]. Because of her fragile identity, her goals keep changing
unexpectedly and are outside her control, and she is unable to be persistent
in pursuing longer term goals.
Constantly changing self-states or conceptions of “who I am” and “what
I want” undermine personal agency: “When I finally feel that I have reached
a point where I know [what I want], then it changes again” [W6]. “I don’t
trust my own judgment. Do I actually have any judgment, or is that broken
too? That [kind of doubt] affects every aspect of my life” [W11]. Several
participants talked about how things “just happen” in their lives; they do
not know why; they feel unable to predict what will happen tomorrow, and
they are not in control of their own lives and personal future. “I would like
to make plans for how things should be, but I am not the captain on my own
bridge [W13]”; “It’s hard for me to act, because I don’t know what’s going to
happen, and I don’t trust myself” [W7]. A few of the women described how
they end up feeling paralyzed, unable to make competent decisions and act:
“Often I end up doing nothing. It just gets overwhelming” [W12]; “When it
comes to making decisions, I feel paralyzed . . . everything, like, disappears,
everything ‘I am’ disappears. . . . I kind of forget what’s important to me and
what it really is that I want. . . . I can’t control it [my life], things just happen,
because I don’t have the motivation and the willpower to take control of my
life” [W11]. This inability to make even trivial decisions also affects their daily
life: “What I find important and give priority keeps changing. It’s really hard
for me to make decisions; when I’m shopping, it can take me 20 minutes to
decide if I should buy orange juice or something. Or I might put some stuff
in my basket to make dinner and then second-guess myself, like, no, I don’t
want that after all” [W8].
I get extremely restless, not what I would consider a normal kind of restlessness, I also
get hyper-emotional, like very angry or very sad, and all of a sudden I feel extremely
happy and I begin to sing and dance, I feel like pounding the walls, because I am so
unsettled inside—especially if no one has time to meet up, and I write everyone, asking
if they could meet, and they can’t. [W5]
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I get so dependent on other people; I don’t know what I think or feel. I just do what they
do, then I can’t be wrong. . . . My thoughts are like his [boyfriend], my feelings are like
his, and my views are the same as his. . . . If I copy him and what he does, I feel safe, I
can’t be wrong and he has no reason to leave me. [W14]
It’s highly ambivalent, I want to fuse with the other person, because that would make
me feel that I exist. But I also have a fear that when I only exist through you, and we
fuse into one, it would be a disaster to lose you, because losing you would mean losing
myself. Somehow, it’s all linked to this fear of being abandoned, which is also a fear of
non-existence. I am afraid of abandonment, because in my head, that means that I will
no longer exist; I am afraid of losing myself. [W11]
62 JØRGENSEN AND BØYE
She continued, “On the one hand, I really need time alone, to recuperate—
because it’s so hard for me to socialize. On the other hand, when I’m alone,
I don’t know who I am, and I get so restless.”
DISCUSSION
The data reported in this study offer nuanced descriptions of how essential
aspects of borderline personality disorder, namely, aspects related to identity
diffusion, are manifested in the subjective experience of adult women diag-
nosed with BPD. The main objective was to collect nuanced descriptions on
how identity diffusion is manifested in the subjective experience and daily lives
of people diagnosed with BPD—the phenomenology of identity diffusion—not
to develop new theoretical or statistically derived (sub-)categories of identity
diffusion nor to focus on structural, dynamic, etiological or (neuro-)cognitive
aspects of BPD and identity diffusion. The participating women’s nuanced
and highly interesting descriptions of their subjective experience associated
with identity diffusion disconfirm the predominant notion that BPD patients
generally lack the self-insight and psychological-mindedness necessary for
being able to provide valid information about complex aspects of their inner
psychic life and identity diffusion.
Nine categories of manifestations of identity diffusion emerged from
the interpretative phenomenological analyses of our collected data. With
very few exceptions, all of the participating BPD patients reported subjective
experiences classified in all nine categories—experiences related to identity
diffusion. Our data illustrate how the ability to answer fundamental ques-
tions related to human identity (“Who am I?”) is severely and painfully com-
promised in patients with identity diffusion (Category 1). The participants
articulated that they are having a very difficult time reconciling contradic-
tory self-representations to form a stable and coherent identity (Category 1),
how their self-image continuously fluctuates, and how their self-concept and
behavior are dictated by momentary emotions or mental states and by efforts
to please imagined expectations from others (Category 2). Most of the women
with BPD have an alienating feeling of inner emptiness (Category 5), often
accompanied by associated feelings of being invisible or totally insignificant
in the eyes of others—“if I were not here, what difference would it make”—in
64 JØRGENSEN AND BØYE
future studies. The findings from this study expand our understanding of
the inner subjective lives of people with BPD and thus broaden the founda-
tion for effective psychotherapeutic treatment of individuals with personality
disorders. As argued by Kierkegaard (1859/1991) “if one is truly to succeed
in leading a person to a specific place, one must first and foremost take care
to find him where he is and begin there. This is the secret in the entire art of
helping” (p. 96). The findings from our study help us to accomplish this; they
help us to understand how it is—and how painful it is—to have to live with
identity diffusion.
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