This study aimed to examine Theory of Mind (ToM) and social competence in children and adolescent... more This study aimed to examine Theory of Mind (ToM) and social competence in children and adolescents with genetic generalised epilepsy (GGE), and explore how they relate to neurocognitive and epilepsy variables. Twenty-two children and adolescents with GGE (8-16 years old) and 22 typically developing controls completed two behavioural tasks (faux-pas, strange stories) assessing cognitive and affective ToM, and a battery of standardised neuropsychological tests. Parents completed questionnaires assessing ToM and social competence. Neurologists completed the Global Assessment Severity of Epilepsy (GASE) scale to measure of epilepsy severity. Children and adolescents with GGE were impaired in both cognitive and affective ToM, and had reduced social competence compared to controls, which was not attributable to low intellectual functioning or impaired executive skills (working memory, inhibition). Lower ToM correlated with reduced social competence in children and adolescents with GGE. Cl...
Parents ifchildren with chronic illness experience multiple stressors associated with their numer... more Parents ifchildren with chronic illness experience multiple stressors associated with their numerous roles. For parents who are workingfull time and carin8Jor a child with chronic illness, the stressors related to mana8in8 work and caring responsibilities are ma8nified. Although the impact ifcaritiq iot a child with chronic illness has been Widely investigated, the literature reveals a paucity if research on the experiences ifparents who are also in Jull time employment. This paper shares qualitative findin8s if a study involvitiq interviews if twelve parents who were workin8Jull time while carin8for a child with chronic illness. Data was collected through in-depth semi structured interviews and thematic analysis was then used to develop and cate80rise themes. Two intertwined themes are reported: (1) griif and (2) dealinq with pre:fessionals. In this study, parents revealed the chronic 8riif they experienced in relation to their child's condition, which iften recurred at various sta8es C?f the child's illness. The child's initial diagnosis wasJound to be the most stresiful part ifthe 8rievin8 process, with most feelin8 their voices as parents were not being heard or valued by health prifessionals at this time. This eifJected parents' corifidence in the health care system and tri88ered the re-emer8ence ifgriif, a8gravatin8 an already stresiful situation. Thefindings illustrate that the 8riif experienced by these parents can be exacerbated by their dealin8s with health proiessionals. ·pJic'itttions Jor various health prifessionals are drawn from the findings in er to hig" . ht avenues where8uidance and support can be provided to these
This study aimed to examine Theory of Mind (ToM) and social competence in children and adolescent... more This study aimed to examine Theory of Mind (ToM) and social competence in children and adolescents with genetic generalised epilepsy (GGE), and explore how they relate to neurocognitive and epilepsy variables. Twenty-two children and adolescents with GGE (8-16 years old) and 22 typically developing controls completed two behavioural tasks (faux-pas, strange stories) assessing cognitive and affective ToM, and a battery of standardised neuropsychological tests. Parents completed questionnaires assessing ToM and social competence. Neurologists completed the Global Assessment Severity of Epilepsy (GASE) scale to measure of epilepsy severity. Children and adolescents with GGE were impaired in both cognitive and affective ToM, and had reduced social competence compared to controls, which was not attributable to low intellectual functioning or impaired executive skills (working memory, inhibition). Lower ToM correlated with reduced social competence in children and adolescents with GGE. Cl...
Parents ifchildren with chronic illness experience multiple stressors associated with their numer... more Parents ifchildren with chronic illness experience multiple stressors associated with their numerous roles. For parents who are workingfull time and carin8Jor a child with chronic illness, the stressors related to mana8in8 work and caring responsibilities are ma8nified. Although the impact ifcaritiq iot a child with chronic illness has been Widely investigated, the literature reveals a paucity if research on the experiences ifparents who are also in Jull time employment. This paper shares qualitative findin8s if a study involvitiq interviews if twelve parents who were workin8Jull time while carin8for a child with chronic illness. Data was collected through in-depth semi structured interviews and thematic analysis was then used to develop and cate80rise themes. Two intertwined themes are reported: (1) griif and (2) dealinq with pre:fessionals. In this study, parents revealed the chronic 8riif they experienced in relation to their child's condition, which iften recurred at various sta8es C?f the child's illness. The child's initial diagnosis wasJound to be the most stresiful part ifthe 8rievin8 process, with most feelin8 their voices as parents were not being heard or valued by health prifessionals at this time. This eifJected parents' corifidence in the health care system and tri88ered the re-emer8ence ifgriif, a8gravatin8 an already stresiful situation. Thefindings illustrate that the 8riif experienced by these parents can be exacerbated by their dealin8s with health proiessionals. ·pJic'itttions Jor various health prifessionals are drawn from the findings in er to hig" . ht avenues where8uidance and support can be provided to these
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