Cohort profile for the creation of the SAIL MELD-B e-cohort (SMC) and SAIL MELD-B children and Young adult e-cohort (SMYC)
Roberta Chiovoloni 1, Nisreen A Alwan 2,3,4, Ann Berrington 5, Michael Boniface6, Nic Fair6, Simon DS Fraser2, Emilia Holland2, Rebecca B Hoyle7, Jakub Dylag6, Rhiannon K Owen1, Mozhdeh Shiranirad7, Sebastian Staennard2, Zlatko Zlatev5, Ashley Akbari1
1 Population Data Science, Swansea University Medical School, Faculty of Medicine, Health & Life Science, Swansea University
2 School of Primary Care, Population Sciences and Medical Education, Faculty of Medicine, Southampton General Hospital, Southampton, UK
3 University Hospital Southampton NHS Foundation Trust, Southampton, UK
4 NIHR Applied Research Collaboration Wessex, Southampton, UK
5 Department of Social Statistics and Demography, University of Southampton, Southampton, UK
6 School of Electronics and Computer Science, University of Southampton, Southampton, UK
7 School of Mathematical Sciences, University of Southampton, Southampton, UK
We have established the SAIL MELD-B electronic cohort (e-cohort SMC) and the SAIL MELD-B children and Young adults e-cohort (SMYC) as a part of the Multidisciplinary Ecosystem to study Lifecourse Determinants and Prevention of Early-onset Burdensome Multimorbidity (MELD-B) project. Each cohort has been created to investigate and develop a deeper understanding of the lived experience of the ‘burdensomeness’ of multimorbidity by identifying new clusters of burdensomness indicators, exploring early life risk factors of multimorbidity and modelling hypothetical prevention scenarios.
Pending publication
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the National Institute for Health Research (NIHR) under its Programme Artificial Intelligence for Multiple and Long-Term Conditions (NIHR203988). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
We would like to acknowledge all other members of the MELD-B Consortium:
This work uses data provided by patients and collected by the NHS as part of their care and support. We would also like to acknowledge all data providers who make anonymised data available for research.
All research has been completed under the permission and approval of the SAIL independent Information Governance Review Panel (IGRP) project number 1377. Further details of this process can be found on the SAIL Databank website (https://saildatabank.com/)
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This work is licensed under a Creative Commons Attribution 4.0 International License.