Class Action Lawsuit Against UChicago and Google
Class Action Lawsuit Against UChicago and Google
Class Action Lawsuit Against UChicago and Google
Plaintiff,
v.
Defendants.
Plaintiff Matt Dinerstein brings this Class Action Complaint and Demand for Jury Trial
against Defendants Google, LLC, The University of Chicago Medical Center, and The
Plaintiff, individually and on behalf of all others similarly situated, alleges as follows upon
personal knowledge as to himself and his own acts and experiences, and, as to all other matters,
1. While tech giants have dominated the news over the last few years for repeatedly
violating consumers’ privacy, Google managed to fly under the radar as it pulled off what is
likely the greatest heist of consumer medical records in history. The compromised personal
information is not just run-of-the-mill like credit card numbers, usernames and passwords, or
even social security numbers, which nowadays seem to be the subject of daily hacks; rather, the
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personal medical information obtained by Google is the most sensitive and intimate information
in an individual’s life, and its unauthorized disclosure is far more damaging to an individual’s
privacy.
2. Beginning in 2017, Google set in motion a plan to make its most significant play
in the healthcare space. This plan had two key components: (1) obtain the Electronic Health
Record (“EHR”) of nearly every patient from the University of Chicago Medical Center from
2009 to 2016; and (2) file a patent for its own proprietary and commercial EHR system that
wouldn’t be published until well after it had obtained hundreds of thousands of EHRs from the
University.
3. EHRs contain patients’ highly sensitive and detailed medical records, including
records revealing not only a person’s height, weight and vital signs, but whether they suffer from
diseases like AIDS, cancer, sickle cell, depression, sarcoidosis, or diabetes, or went through a
medical procedure like an abortion, transplant, or mastectomy. In short, EHRs are the most
4. The disclosure of EHRs here is even more egregious because the University
promised in its patient admission forms that it would not disclose patients’ records to third
parties, like Google, for commercial purposes. Nevertheless, the University did not notify its
patients, let alone obtain their express consent, before turning over their confidential medical
5. In an attempt to provide the public a false sense of security over the legitimate
privacy concerns with these practices, Google and the University claimed the medical records
were de-identified. But that’s incredibly misleading. The records the University provided Google
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included detailed datestamps1 and copious free-text notes. As shown below, Google—as one of
the most prolific data mining companies—is uniquely able to determine the identity of almost
following Google’s massive medical data grab, it fully absorbed and took control of a division of
DeepMind known as “DeepMind Health,” for the specific purpose of analyzing medical records
and creating commercial products. Google’s access to DeepMind’s technology allows it to find
connections between various data points (i.e. from EHRs and Google users’ data).
7. Google spent the last decade attempting to gain a foothold in the trillion-dollar per
year healthcare industry. But, to develop the type of healthcare technologies most in line with its
data analytics and mining platforms, Google needed access to massive amounts of identifiable
medical records. To a company like Google—best known for its ubiquitous search engine, but in
reality, one of the largest data mining companies in the world—access to that type of data is
extremely elusive.
8. To be sure, Google’s overtures for such detailed and identifiable records from
hospitals, researchers, and healthcare providers alike were all uniformly rebuffed. That is, of
9. The University provided Google a partner willing to turn over the information that
it desperately needed. Indeed, the University—seeking not much more than notoriety for its
collaboration with Google in the development of healthcare products—was happy to turn over
the confidential, highly sensitive and HIPAA-protected records of every patient who walked
1
The term “datestamp,” in the medical field, is inclusive of both date and time.
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through its doors between 2009 and 2016. Ultimately, by getting the University to turn over
these records, Google quietly pulled off a feat that other tech giants (like Facebook) have had to
abandon under mounting public pressure for other gross privacy violations.2
10. And as if all of this weren’t bad enough, the University also engaged in a cover up
to keep the breach out of the public eye so as to avoid the public backlash. The cover up is
particularly egregious because the University had a legal duty to inform its patients and the
authorities of the unauthorized transfer of their medical records to Google. While this type of
public misinformation campaign may be expected from a tech company that has been known to
play fast and loose with the information of its customers, the fact that a prominent institution like
11. Accordingly, this Complaint seeks all appropriate damages and injunctive relief to
address, remedy, and prevent further harm to Plaintiff and the Class resulting from Defendants’
gross misconduct.
PARTIES
12. Plaintiff Matt Dinerstein is a natural person and a citizen of the State of Illinois.
13. Defendant Google, LLC, is a limited liability company existing under the laws of
the State of Delaware, with its principal place of business located at 1600 Amphitheatre
corporation existing under the laws of the State of Illinois, with its principal place of business
2
Facebook sent a doctor on a secret mission to ask hospitals to share patient data, CNBC,
https://www.cnbc.com/2018/04/05/facebook-building-8-explored-data-sharing-agreement-with-
hospitals.html?cid=sm_npd_nn_tw_ma (last visited on June 26, 2019).
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under the laws of the State of Illinois, with its principal place of business located at 5801 South
16. This Court has subject matter jurisdiction under 28 U.S.C. § 1332(d)(2) because
(i) at least one member of the Class is a citizen of a different state than any Defendant, (ii) the
amount in controversy exceeds $5,000,000, exclusive of interests and costs, and (iii) none of the
17. This Court has personal jurisdiction over Defendants because they conduct
business in this District and the wrongful conduct giving rise to this case occurred in, was
directed to, or emanated from this District. This Court further has personal jurisdiction over
Defendants The University of Chicago Medical Center and The University of Chicago because
18. Venue is proper in this District under 28 U.S.C. § 1391(b) because Defendants
The University of Chicago Medical Center and The University of Chicago maintain their
headquarters and principal place of business in this District, and a substantial part of the events
FACTUAL BACKGROUND
I. Detailed and Identifiable Medical Records are the Most Valuable Consumer Data,
and the Hardest to Obtain.
19. With the rise of the data mining industry, corporations have started gathering
3
The University of Chicago Medical Center and The University of Chicago are fully
integrated entities that have acted jointly in this case. The University of Chicago Medical Center
and The University of Chicago are jointly managed and share employees.
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untold amounts of data regarding consumers’ daily lives, including what they do on their phones,
and computers, where they travel each day, and even what they purchase in retail stores. From
this, data miners and brokers can build detailed portfolios about consumers that are then bought
20. A key component of any data portfolio is the status of a consumer’s health. While
data points such as purchase histories, search engine and browsing histories, as well as social
media posts can provide insight into certain health problems, a clear picture of a consumer’s
health remains largely a black hole for data miners. The only substantial remedy to this problem
insurance companies, and other medical organizations—including federal and many state health
departments—provide limited medical information to data brokers. Three quarters of all retail
pharmacies send some portion of their electronic records to these companies. While this data is
largely de-identified, data brokers are able to make numerous assumptions about the data in
22. These data points are often incomplete in other ways beyond de-identification. In
most instances, the data points are merely a snapshot of a small part of a consumer’s overall
health (e.g., a specific prescription or a single ailment, etc.). This type of data will rarely, if ever,
show a complete medical history or in-depth accounting of medical ailments and procedures over
4
How Data Brokers Make Money Off Your Medical Records, SCIENTIFIC AMERICAN,
https://www.scientificamerican.com/article/how-data-brokers-make-money-off-your-medical-
records (last visited on June 26, 2019).
5
Your private medical data is for sale – and it's driving a business worth billions, THE
GUARDIAN, https://www.theguardian.com/technology/2017/jan/10/medical-data-multibillion-
dollar-business-report-warns (last visited on June 26, 2019).
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time.6 That data, largely contained only in the records of doctors and hospitals, is far more rare
and is viewed as a “Holy Grail” of health information for any data miner.7
23. A complete health record is an extremely sensitive data set that provides insight
into the most personal aspects of an individual’s life. It can shed light on chronic conditions, life-
threatening illnesses, whether a person has addiction issues, disabilities, and issues related to
pregnancy, along with personal details such as sexual preferences, gender nonconformity, and
24. The details of an individual’s medical history are of significant value to a variety
retail marketers, and obviously, companies in the health care business. These entities can rely on
consumers’ records to make decisions about whether to lend money, how to price insurance
25. Full medical records are so sensitive, and so sought after, that Congress created a
comprehensive statutory regime, known as the Health Insurance Portability and Accountability
Act (“HIPAA”), to prevent their unauthorized disclosure. HIPAA established rules that require
healthcare organizations to limit who can access, view, or share health data. It is meant to ensure
that any information disclosed to healthcare providers (e.g., doctors and hospitals) and health
plans (e.g., insurance companies), or information that is created by them, is subject to strict
6
The incredible potential and dangers of data mining health records, THE WASHINGTON
POST, https://www.washingtonpost.com/news/innovations/wp/2014/10/01/the-incredible-
potential-and-dangers-of-data-mining-health-records/?utm_term=.f92ac1b63800 (last visited on
June 26, 2019).
7
How Your Medical Data Fuels a Hidden Multi-Billion Dollar Industry, TIME,
http://time.com/4588104/medical-data-industry (last visited on June 26, 19); see also The Hidden
Global Trade in Patient Medical Data, YALEGLOBAL ONLINE,
https://yaleglobal.yale.edu/content/hidden-global-trade-patient-medical-data (last visited on June
26, 2019).
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security controls. Patients are also given control over who their information is released to and
26. Besides the obvious obligations that health-care providers, like the University,
have to act in the best interest of their patients’ health, a primary duty of any health care provider
during and long after patients are cared-for—regardless of whether in connection with a run-of-
the-mill visit to the doctor’s office or life-saving trip to the emergency room—is to protect their
27. Without HIPAA, data miners like Google, in conjunction with hospitals like the
University, could create a thriving marketplace for medical data. Companies would willingly pay
millions of dollars for complete medical records, which they would analyze, repackage and sell
to thousands of clients.
28. Fortunately, HIPAA does exist. The only question that remains is whether entities
29. HIPAA was enacted and became effective in 1996. Prior to HIPAA, no generally
accepted set of security standards or general requirements for protecting health information
existed in the health care industry. However, the increased reliance on electronic information
systems for storing medical information and facilitating treatment created a rising need for
regulation.
30. HIPAA required the federal government to develop regulations protecting the
privacy and security of certain health information. In response, the government published the
31. The Privacy Rule, or Standards for Privacy of Individually Identifiable Health
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Information, establishes national standards for the protection of certain health information. The
Security Rule establishes a national set of security rules for protecting certain health information
32. The Security Rule operationalizes the protections contained in the Privacy Rule
by addressing the technical and non-technical safeguards that organizations called “covered
entities”8 must put in place to secure individuals’ “electronic protected health information.”9
33. Violations of HIPAA carry significant fines and penalties of up to $50,000 per
violation. Additionally, covered entities and specified individuals who “knowingly” obtain or
disclose individually identifiable health information can face imprisonment of up to one year.
34. Title II of HIPAA contains what are known as the Administrative Simplification
provisions. 42 U.S.C. §§ 1301, et seq. These provisions require, among other things, that the
Department of Health and Human Services create rules to streamline the standards for handling
individually identifiable personal health information. The Department of Health and Human
Services established standards to protect such electronic personal health information from
unauthorized disclosure. These standards require entities, such as the University, to adopt
administrative, physical, and technical safeguards to ensure the confidentiality, integrity, and
identifiers are removed from the health information), HIPAA does not restrict the use or
8
“Covered entities” include health plans, health care clearinghouses, and any health care
provider who transmits health information in electronic form in connection with a transaction for
which the Secretary of HHS has adopted standards under HIPAA. See Summary of the HIPAA
Security Rule, HHS.gov, https://www.hhs.gov/hipaa/for-professionals/security/laws-
regulations/index.html (last visited on June 26, 2019).
9
Id.
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disclosure of such information. Under HIPAA, health information that does not identify an
individual, and there is no reasonable basis to believe that the information can be used to identify
36. Here, because Defendants touted to the public that the mass transfer of the
information.
(i) Applying such principles and methods, determines that the risk is
very small that the information could be used, alone or in combination
with other reasonably available information, by an anticipated recipient
to identify an individual who is a subject of the information; and
(ii) Documents the methods and results of the analysis that justify such
determination;
The second method for de-identification is referred to as the “Safe Harbor.” According to
this method, the following categories of information must be removed from personal health
(A) Names; (B) All geographic subdivisions smaller than a state, including street
address, city, county, precinct, ZIP code, and their equivalent geocodes, except
for the initial three digits of the ZIP code if, according to the current publicly
available data from the Bureau of the Census…; (C) All elements of dates (except
year) for dates that are directly related to an individual, including birth date,
admission date, discharge date, death date, and all ages over 89 and all elements
of dates (including year) indicative of such age, except that such ages and
elements may be aggregated into a single category of age 90 or older; (D)
Telephone numbers; (L) Vehicle identifiers and serial numbers, including license
plate numbers; (E) Fax numbers; (M) Device identifiers and serial numbers; (F)
Email addresses; (N) Web Universal Resource Locators (URLs); (G) Social
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security numbers; (O) Internet Protocol (IP) addresses; (H) Medical record
numbers; (P) Biometric identifiers, including finger and voice prints; (I) Health
plan beneficiary numbers; (Q) Full-face photographs and any comparable images;
(J) Account numbers; (R) Any other unique identifying number, characteristic, or
code, except as permitted by paragraph (c) of this section [Paragraph (c) is
presented below in the section “Re-identification”]; and (K) Certificate/license
numbers.
39. As described below, the Defendants did not follow either of these rules in
40. The University holds itself out as following the highest standards of patient care
and being among the highest rated and most awarded hospitals in the world,10 claims which
extend to their commitment to patient privacy and the protection of medical data. The University
widely represents that it follows HIPAA and other applicable laws, takes patient privacy
41. The records governed by HIPAA are exactly the type of medical records in the
possession of the University. Each time a patient is seen, whether for a brief outpatient procedure
or a month-long in-patient stay, the University collects detailed information about their current
and past health conditions, as well as creates sensitive new data while the individual is treated.
Individuals entrust their most personal information, experiences, and physical and mental
hardships to the medical staff of the University. This can include genetic information, family
health histories, details of sexual encounters, mental illness or a terminal diagnosis. In return,
patients expect that the University will act accordingly and protect their privacy.
42. Over decades of operation, the University has collected and stored billions of data
10
Award and Distinctions, UChicago Medicine, http://www.uchospitals.edu/about/awards/
(last visited on June 26, 2019).
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43. From both a legal and ethical standpoint, it is unquestionable that the University is
obligated to protect patient data, prevent its unauthorized disclosure, and act in the best interests
of its patients. It is equally obvious that the University’s patients do not want, and do not consent
to, the transfer of their medical records to a third-party data miner intent on using them for
commercial purposes.
44. The obligation to protect patient data at the University is heightened by the socio-
economic makeup of its patients. A significant portion of the patients treated at the University
are socially and economically disenfranchised, making them far less able to vindicate and
IV. An Overview of Google and its Aggressive Efforts to Enter the Trillion-Dollar Per
Year Healthcare Industry.
45. Although primarily recognized for its search engine, Defendant Google operates
one of the most far reaching and comprehensive data mining machines in the world. The Wall
Google Analytics is far and away the web’s most dominant analytics platform.
Used on the sites of about half of the biggest companies in the U.S., it has a total
reach of 30 million to 50 million sites. Google Analytics tracks you whether or
not you are logged in. Meanwhile, the billion-plus people who have Google
accounts are tracked in even more ways. In 2016, Google changed its terms of
service, allowing it to merge its massive trove of tracking and advertising data
with the personally identifiable information from our Google accounts…. Google
also is the biggest enabler of data harvesting, through the world’s two billion
active Android mobile devices.11
46. With billions of monthly active users, Google has access to an exorbitant amount
11
Who Has More of Your Personal Data Than Facebook? Try Google, THE WALL STREET
JOURNAL, https://www.wsj.com/articles/who-has-more-of-your-personal-data-than-facebook-try-
google-1524398401 (last visited on June 26, 2019).
12
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of personal consumer data, including Internet web browsing histories (Google Chrome), Internet
searches (Google Search), physical locations (Google Maps and Waze), personal and work email
(Gmail), and mobile devices (Android). This wealth of information feeds into Google’s highly
profitable analytics and advertising platform, which makes up virtually all of its $110.8 billion of
annual revenues.
47. While analytics and advertising are its primary source of income, Google
constantly looks to develop new products and services, and enter new markets. One market it has
been aggressively trying to enter is the trillion-dollar per year healthcare industry.
a. Google Research
48. Over the last decade, Google has invested heavily in health-related products and
services, including:
• Introducing G Suite (i.e., Gmail, Docs, Drive, Calendar, and other cloud
services) for healthcare businesses;
• Adding “symptom search” and “health cards” to Google Search, which allows
consumers to more easily research answers to common health-related
questions;12 and
• Making “big bets in healthcare and life sciences” including spending hundreds
of millions investing in and acquiring healthcare companies like Calico,
DeepMind, and Verily.
12
In fact, 1 in 20 Google searches are for health-related information. See Prem Ramaswami,
A remedy for your health-related questions: health info in the Knowledge Graph, GOOGLE (Feb.
10, 2015), https://googleblog.blogspot.com/2015/02/health-info-knowledge-graph.html (last
visited on June 26, 2019).
13
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49. Google also created what it calls its Google Research healthcare team. Google
Research is Google’s in-house research center that it markets as an academic-type think tank or
research center (in reality, it’s just a product research and development division). The healthcare
team, in turn, researches opportunities for applying Google technologies—machine learning and
“AI is poised to transform medicine, delivering new, assistive technologies that will
empower doctors to better serve their patients. Machine learning has dozens of
possible application areas, but healthcare stands out as a remarkable opportunity. .
. .”13
50. Google was especially interested in using its machine learning models to predict
healthcare events, like detecting a patient’s heart attack hours or even days in advance.
51. But Google had difficulty gaining a foothold in the predictive health analytics
industry. Indeed, Google’s major hurdle to predicting healthcare events, as described above, was
a lack of access to massive amounts of personal health data, which consumers are not eager to
share with data miners and thus, healthcare providers are prohibited from doing so. Google knew
service that let consumers organize and store their personal health data and medical records on
Google’s platform. The service barely got off the ground, however. After a short period of time,
53. Thereafter, Google went looking for new avenues of access to patient data.
13
Healthcare, GOOGLE RESEARCH, https://research.google.com/teams/brain/healthcare/
(last visited on June 26, 2019).
14
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b. DeepMind
54. In 2014, for $520 million, Google acquired a tiny startup named DeepMind that
focused on bringing artificial intelligence and advanced machine learning to, among others, the
healthcare industry.
campaign, veiled as well-intentioned research, to obtain millions of medical records from health
care organizations.
56. Initially, Google and DeepMind participated in a 2015 “study” that processed
patient data from the Royal Free NHS Foundation Trust. The medical record sharing there raised
serious concerns about privacy and patient consent. The Information Commissioner’s Office, a
UK data protection watchdog, stated, “[o]ur investigation found a number of shortcomings in the
way patient records were shared for this trial . . . Patients would not have reasonably expected
their information to have been used in this way, and the Trust could and should have been far
more transparent with patients as to what was happening.” It concluded that the agreement with
57. DeepMind, in response, stated “in our determination to achieve quick impact
when this work started in 2015, we underestimated the complexity of the NHS and of the rules
around patient data, as well as the potential fears about a well-known tech company working in
14
See Royal Free breached UK data law in 1.6m patient deal with Google’s DeepMind,
THE GUARDIAN, https://www.theguardian.com/technology/2017/jul/03/google-deepmind-16m-
patient-royal-free-deal-data-protection-act (last visited on June 26, 2019); see also The
Information Commissioner, the Royal Free, and what we’ve learned,
https://deepmind.com/blog/ico-royal-free (last visited on June 26, 2019).
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health.”15
58. While their statements were meant to be an apology and included promises to
59. During this time, Google and DeepMind widely propagated the narrative that
DeepMind would continue to operate independently and outside the reach of Google, and that
60. However, shortly after Google acquired hundreds of thousands of records from
the University of Chicago, that narrative finally fell apart. In November 2018, Google announced
that it would fully absorb and take control of DeepMind Health, separating it from DeepMind
itself.17 As such, any supposed wall protecting health data collected and processed by DeepMind
was gone. And furthermore, Google now has at its disposal all the advanced capabilities
possessed by DeepMind to apply to the health records acquired from the University of
Chicago.18
15
The Information Commissioner, the Royal Free, and what we’ve learned,
DeepMind.com, https://deepmind.com/blog/ico-royal-free/ (last visited on June 26, 2019).
16
Google has since gained access to 700,000 medical records through the US Department
of Veterans Affairs. It remains unclear, what, if any, consent veterans provided to share their
medical records with Google or the level of detail included in those records. Researching patient
deterioration with the US Department of Veterans Affairs, DeepMind.com,
https://deepmind.com/blog/research-department-veterans-affairs/ (last visited on June 26, 2019).
17
DeepMind Is Handing DeepMind Health Over To Google, FORBES,
https://www.forbes.com/sites/samshead/2018/11/13/deepmind-is-handing-over-deepmind-health-
to-google/#6db706b72d55 (last visited on June 26, 2019); Why Google Just Tightened Its Grip
On DeepMind, Forbes, https://www.forbes.com/sites/parmyolson/2018/11/14/why-google-just-
tightened-its-grip-on-deepmind/#1aa439552789 (last visited on June 26, 2019).
18
Google has a responsibility to protect DeepMind data, Financial Times,
https://www.ft.com/content/83e1e46c-ebf0-11e8-8180-9cf212677a57 (last visited on June 26,
2019); Google, DeepMind and my confidential health records, Financial Times,
16
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61. Additionally, it is clear that the takeover of DeepMind Health was meant to be a
major step toward the full-scale commercialization of Google’s health products. As noted by the
Financial Times:
David Feinberg, the former head of the US private healthcare group Geisinger,
will run Google Health, drawing together and commercializing the company’s
disparate experiments in everything from diagnosing cancer to managing chronic
illness and equipping doctors with more technology… ‘[Feinberg’s] expertise is
on the operational side of the health payer-provider space, rather than research.
His role will be to figure out a go-to-market strategy, how to deploy and sell tools
to hospitals, health insurance carriers and patients,’ said Nikhil Krishnan, health
analyst at CBInsights, who has authored an in-depth report on Google’s
healthcare business.19 (Emphasis added).
for its own electronic health records system, which “include a computer memory storing
aggregated EHR data from millions of patients; a computer executing deep learning on those
records in a standardized data structure format, and an interface for clinicians displaying salient
facts from the patient’s past and predicted future clinical events.”20 Google submitted this
application in 2017, demonstrating its clear intent to commercialize the University’s medical
records prior to obtaining them. Specifically, as noted below, the application discusses providing
its EHR product in a “fee for service, subscription, standalone product, or other business model.”
17
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d. Google is Not Alone in its Pursuit of Medical Records; It is Just the Most
Successful.
63. Moreover, Google’s goal of obtaining these valuable and sensitive records is not
unique; rather it is shared by Google’s competitors in the data mining space, and as recently
revealed, that includes Facebook. By its own description, Facebook had a plan to:
combine what a health system knows about its patients (such as: person has heart
disease, is age 50, takes 2 medications and made 3 trips to the hospital this year)
with what Facebook knows (such as: user is age 50, married with 3 kids, English
isn’t a primary language, actively engages with the community by sending a lot of
messages). The project would then figure out if this combined information could
improve patient care, initially with a focus on cardiovascular health…. To address
these privacy laws and concerns, Facebook proposed to obscure personally
identifiable information, such as names, in the data being shared by both sides.
However, the company proposed using a common cryptographic technique called
hashing to match individuals who were in both data sets. That way, both parties
would be able to tell when a specific set of Facebook data matched up with a
specific set of patient data. The issue of patient consent did not come up in the early
discussions.21
64. Yet, Facebook, then under fire for failing to prevent the capture and misuse of at
21
Facebook sent a doctor on a secret mission to ask hospitals to share patient data, CNBC,
https://www.cnbc.com/2018/04/05/facebook-building-8-explored-data-sharing-agreement-with-
hospitals.html?cid=sm_npd_nn_tw_ma (last visited on June 26, 2019).
18
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least 87 million users’ data (along with myriad other privacy scandals), stated “we decided that
we should pause these discussions so we can focus on other important work, including doing a
better job of protecting people’s data and being clearer with them about how that data is used in
65. Google, on the other hand, was not yet facing an international privacy scandal,
and found a willing partner in the University whose primary focus was apparently not on patient
privacy, but rather creating headlines such as “Google works with University of Chicago to
predict medical events,” “U. of C. Medicine, Google hope to use patterns in patient records to
predict health,” and “UChicago Medicine and Google—a data-driven duo to watch.” While
these headlines circulated in the medical industry for a few days, the ramifications of the
66. In May 2017, Google announced that it was partnering with The University of
Chicago to “research ways to use machine learning to predict medical events.” And only months
later, the University transferred its EHR to Google, consisting of hundreds of thousands of its
a. The University did not obtain patients’ express consent to disclose their
medical records to Google.
67. Prior to transferring these records, the University did not obtain the express
consent of its patients to share them for the purposes Google intended to use them for, nor did it
22
Facebook is pausing its work on sharing data with hospitals in the wake of the
Cambridge Analytica scandal, BUSINESS INSIDER, http://www.businessinsider.com/facebook-
pauses-health-collaboration-after-cambridge-analytica-scandal-2018-4?r=UK&IR=T (last visited
on June 26, 2019).
19
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68. Through its Notice of Privacy Practices and Admission and Outpatient Agreement
and Authorization, the University represented to patients that it would, inter alia: protect their
medical information, maintain the privacy of their medical information, follow the terms of the
Notice of Privacy Practices in keeping their medical information confidential, comply with
HIPAA privacy regulations, and comply with any other federal and state laws, including all laws
69. The University’s Notice of Privacy Practices states that “protecting the privacy of
your health information is important” and explicitly warrants that it “will obtain your written
permission […] for the sale of your medical information.” Nowhere does the University disclose
Authorization form does not give the University permission to disclose patient’s medical records
journal describing the results of its research and the methodology it employed in analyzing
patients’ medical records.23 The publication revealed that while the EHRs were “de-identified,”
the datestamps from the University patients’ records were maintained. Further, the University’s
23
Alvin Rajkomar et al., Scalable and accurate deep learning for electronic health records,
1 NPJ DIGITAL MEDICINE, January 2018 at 4, available at
https://www.nature.com/articles/s41746-018-0029-1 (last visited on June 26, 2019)
20
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72. The medical records given to Google also contained the following information on
a. Patient demographics;
b. Provider orders;
c. Diagnoses;
d. Procedures;
e. Medications;
f. Laboratory values;
g. Vital signs; and
h. Flowsheet data.24
73. Only months after the transfer was complete did it become public that the
datestamps, along with free-text notes data, were only provided by the University, and not by any
other hospital working with Google.25 That’s not simply a coincidence or a failure to persuade on
the part of Google. Rather, the reason no other hospital, including the other health care providers
partnering with Google, provided this type of information is because it would be a prima facie
74. Publicly, Google and the University touted the security measures used to transfer
and store these records, along with the fact that they had been “de-identified.” In reality, these
records were not sufficiently anonymized and put the patients’ privacy at grave risk.
75. The inclusion of, at the very least, the datestamp data immediately places the
transfer of this medical data outside of the Safe Harbor provisions of HIPAA.
76. On information and belief, as required by HIPAA, the University did not perform
an expert determination before transferring the medical records to Google; or, alternatively, if it
did make that attempt, any finding that “the risk is very small that the information could be used,
24
Id.
25
Id.
21
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medical records transferred to Google without patient permission, Google is uniquely able to re-
78. Setting aside Google’s specific abilities, the risk of medical record re-
identification is high. Researchers with limited access to public data sets and supposedly de-
identified medical records have been able to re-identify patients at a shockingly high rate. For
example, in one study, researchers at Harvard’s Data Privacy Lab were able to re-identify 43%
of de-identified medical discharge records utilizing only publicly available data they purchased
for $50.26
79. In another example, physical activity data was recently used to re-identify
thousands of medical records (95% of the available data set) by utilizing artificial intelligence
and machine learning. Researchers analyzed the output of fitness trackers and demographic
characteristics such as age, gender, education level, annual household income, race, and country
of birth.27 As noted by Anil Aswani of the University of California, Berkeley, one of the study’s
26
Latanya Sweeney, Matching Known Patients to Health Records in Washington State
Data, HARVARD UNIVERSITY, available at https://dataprivacylab.org/projects/wa/1089-1.pdf; see
also How Someone Can Re-Identify Your Medical Records, BLOOMBERG,
https://www.bloomberg.com/graphics/infographics/reidentifying-anonymous-medical-
records.html (last visited June 26, 2019).
27
Linda Carroll, Anonymous patient data may not be as private as previously thought,
REUTERS, https://news.yahoo.com/anonymous-patient-data-may-not-private-previously-thought-
190248280.html (last visited June 26, 2019).
22
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authors, “[t]he study shows that machine learning can successfully re-identify the de-identified
physical activity data of a large percentage of individuals, and this indicates that our current
practices for de-identifying physical activity data are insufficient for privacy … More broadly it
suggests that other types of health data that have been thought to be non-identifying could
potentially be matched to individuals by using machine learning and other artificial intelligence
technologies.”28
80. Accordingly, sharing medical records, with anyone, that include the identifying
information noted above (including datestamps and free-text notes) already has a high
81. However, when the transfer of medical records is made to Google, the ability to
82. Google is one of the largest and most comprehensive data mining companies in
the world, drawing data from thousands of sources and compiling information about individuals’
personal traits (gender, age, sexuality, race), personal habits, purchases, and associations.
83. Not unlike recent revelations about Facebook and Cambridge Analytica, Google
also creates detailed profiles of millions of Americans for the purpose of predicting how they
will react to certain events, what and when they will buy a product, and other behavioral
patterns.
84. Based on these detailed profiles alone, Google has access to public and non-
public information that could easily lead to the re-identification of the medical records it received
28
Id.
23
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from the University. And, of course, artificial intelligence and machine learning are the core
focus and product of DeepMind Health, Google’s newest addition to its healthcare operations
85. As noted by Bloomberg, “[f]ew companies are better poised to analyze this
organism than Google. The company and its Alphabet cousin, Verily, are developing devices to
track far more biological signals. Even if consumers don’t take up wearable health trackers en
masse, Google has plenty of other data wells to tap. It knows the weather and traffic. Google’s
Android phones track things like how people walk, valuable information for measuring mental
decline and some other ailments. All that could be thrown into the medical algorithmic soup.”29
86. Beyond the vast amount of personal information Google possesses, and its
incredibly powerful analytics capabilities (including DeepMind Health), Google has in its
possession detailed geolocation information that it can use to pinpoint and match exactly when
87. Google tracks consumer locations through a variety of means including users of
Android phones and its mobile applications, like Maps and Waze. Likewise, when a consumer
uses other Google products, such as its search engine, Google records his or her Internet Protocol
address, which corresponds to a very specific physical location. Google is, therefore, able to
identify hundreds of millions of individuals’ exact location within a matter of feet, if not inches,
29
Google Is Training Machines to Predict When a Patient Will Die, Bloomberg
https://www.bloomberg.com/news/articles/2018-06-18/google-is-training-machines-to-predict-
when-a-patient-will-die (last visited June 26, 2019).
24
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not) as a way to improve geolocation mapping.31 The University offers a comprehensive WiFi
network at all public buildings on its medical campus,32 that when a patient connects to it, or
even simply in the buildings where the network is live, would identify the location of the
network to Google through its prior knowledge of the exact location of that specific WiFi
network.
93. This geolocation information, when combined with the exact datestamps for
admission and discharge (along with other health events at the hospital) included in the
University’s medical records, and cross referencing the age, gender, and demographic
information with its own data, creates a perfect formulation of data points for Google to identify
94. If that weren’t enough, the University’s release of medical records further
imperiled patient privacy by including free-text notes. These notes are normally not included in
de-identified medical records and themselves create an enormous wealth of data re-identifying
95. On information and belief, the process used to redact the free-text notes, and its
specific results, were not properly audited or verified in an independent manner. As such, there is
31
How Google Uses Wi-Fi Networks to Figure Out Your Exact Location, Slate,
https://slate.com/technology/2018/06/how-google-uses-wi-fi-networks-to-figure-out-your-exact-
location.html (last visited on June 26, 2019) (“Google doesn’t merely collect IP-address data to
estimate a user’s location. Instead, Google retains a detailed map of known Wi-Fi networks and
access points. By knowing the exact location of these networks, and your proximity to them, its
location services can gauge your location with roughly 30 feet of accuracy.”) (emphasis added).
32
Wireless Internet Access, UChicago Medicine,
https://www.uchicagomedicine.org/patients-visitors/visitor-information/wireless-internet-access
(last visited on June 26, 2019).
33
Google could easily also cross reference consumer search histories with the records
themselves (e.g., a University medical record reflects a specific procedure on a specific date,
which can be cross referenced with users in the same geographic location performing Google
searches about that procedure in the same time period).
28
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no available information regarding the rate of personally identifying information that may have
evaded redaction and was transferred to Google. The methods and design of this software, and
whether or not it could comprehensively review and redact millions of data points, remains a
complete mystery to the patients whose records are now in the hands of Google.
96. Both Google and the University violated HIPAA by sharing and receiving
medical records that included sufficient information for Google to re-identify the patients. Both
were aware at the time of the transfer that the medical records contained information outside of
HIPAA’s Safe Harbor provisions, that a competent expert determination was not made, and that
the thousands of patients had not given proper consent to allow Google to take possession of the
97. Without question, the University exploited its patients. The University took
advantage of the fact that a large number of its patients, due to socio-economic barriers, are not
in a position to assert their right to privacy and take steps to ensure that their medical records are
98. Plaintiff Matt Dinerstein was admitted to The University Medical Center on June
4, 2015 and checked out on June 7, 2015 and was again admitted on June 25, 2015 and checked
99. During his stay, the University generated numerous pages of health records that
100. In 2015, including during his stay at the University Medical Center, Dinerstein
used a smartphone with Google applications installed that, on information and belief, collected
29
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his geolocation information and transmitted it back to Defendant Google. During that time,
medical information to Defendant Google. The University did not properly de-identify
Dinerstein’s medical health records and included datestamps associated with his procedures as
102. Dinerstein never gave his written consent—or any consent whatsoever—to the
University to disclose his confidential medical information to Google. Similarly, he did not give
Defendant Google permission to use his medical records for any purpose, let alone for a
commercial purpose.
103. Dinerstein paid health insurance premiums and other fees associated with his
CLASS ALLEGATIONS
104. Class Definition: Plaintiff Matt Dinerstein brings this action on behalf of himself
All individuals in the United States whose Electronic Health Records were transferred to
Google (or any of its related entities) by The University of Chicago (or any of its related
entities).
The following people are excluded from the Class: (1) any Judge or Magistrate presiding over
this action and the members of their family; (2) Defendant, Defendant’s subsidiaries, parents,
successors, predecessors, and any entity in which the Defendant or its parents have a controlling
interest and their current or former employees, officers and directors; (3) persons who properly
execute and file a timely request for exclusion from the Class; (4) persons whose claims in this
matter have been finally adjudicated on the merits or otherwise released; (5) Plaintiff’s counsel
30
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and Defendants’ counsel; and (6) the legal representatives, successors, and assigns of any such
excluded persons.
105. Numerosity: The exact number of members of the Class is unknown, but
individual joinder in this case is impracticable. The Class likely consists of hundreds of
thousands of individuals. Members of the Class can be easily identified through Defendants’
records.
106. Commonality and Predominance: There are many questions of law and fact
common to the claims of Plaintiff and the other members of the Class, and those questions
predominate over any questions that may affect individual members of the Class. Common
questions for the Class include but are not limited to the following:
107. Typicality: Plaintiff’s claims are typical of the claims of the other members of the
Class in that Plaintiff and the members of the Class sustained damages arising out of Defendants’
108. Adequate Representation: Plaintiff has and will continue to fairly and
adequately represent and protect the interests of the Class and has retained counsel competent
and experienced in complex litigation and class actions. Plaintiff has no interests antagonistic to
those of the Class, and Defendants have no defenses unique to Plaintiff. Plaintiff and his counsel
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are committed to vigorously prosecuting this action on behalf of the members of the Class, and
they have the resources to do so. Neither Plaintiff nor his counsel have any interest adverse to
109. Superiority: This class action is also appropriate for certification because class
proceedings are superior to all other available methods for the fair and efficient adjudication of
this controversy and joinder of all members of the Class is impracticable. The damages suffered
by the individual members of the Class will likely be small relative to the burden and expense of
Thus, it would be virtually impossible for the individual members of the Class to obtain effective
relief from Defendants’ misconduct. Even if members of the Class could sustain such individual
litigation, it would not be preferable to a class action because individual litigation would increase
the delay and expense to all parties due to the complex legal and factual controversies presented
in this Complaint. By contrast, a class action presents far fewer management difficulties and
provides the benefits of single adjudication, economy of scale, and comprehensive supervision
by a single court. Economies of time, effort, and expense will be fostered and uniformity of
110. Plaintiff incorporates the foregoing allegations as if fully set forth herein.
111. The Illinois Consumer Fraud and Deceptive Business Practices Act, 815 ILCS
505 (“ICFA”), protects both consumers and competitors by promoting fair competition in
112. The ICFA prohibits any unlawful, unfair, or fraudulent business acts or practices,
32
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including the employment of any deception, fraud, false pretense, false promise, or
113. As described herein, the University has engaged in unlawful conduct and per se
114. Through its Notice of Privacy Practices and Admission and Outpatient Agreement
and Authorization, the University represented to Plaintiff and the Class that it would, inter alia:
protect their medical information, maintain the privacy of their medical information, follow the
terms of the Notice of Privacy Practices in keeping their medical information confidential, and
comply with any other federal and state laws, including all laws that govern patient
confidentiality.
115. The University’s privacy promises were, in fact, false. The University did not
keep Plaintiff’s and Class members’ medical records confidential and did not prevent
unauthorized access to them. In fact, the University did the opposite. On information and belief,
Plaintiff’s and the Class members’ medical records were provided to Defendant Google when the
Google.
116. Knowing that consumers are less likely to do business with companies that fail to
keep their personal information confidential, the University made the false privacy
representations with the intention that Plaintiff would rely on them in contracting with the
117. Had the University disclosed that it would not keep Plaintiff’s and the Class
did not comply with state and federal law—Plaintiff and the Class members would not have paid
33
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at all for the University’s health care services (i.e., the value of health care services without
adequate privacy protections is worth substantially less than the value of such services with
adequate protections).
118. Accordingly, the University’s false representations regarding its privacy practices
119. The University’s failures to comply with its privacy promises and obligations
120. The University’s inadequate privacy protections violated state and federal law and
121. The University’s unlawful conduct caused Plaintiff and the Class members
monetary damages because had the University disclosed that it would provide Defendant Google
their medical records, they would not have paid at all for the University’s health care services—
either directly or indirectly by paying their health care insurance premiums, co-pays, and/or
insurance deductibles.
122. Further, because Plaintiff and the Class members paid, in part, for the University
to keep their medical information confidential in compliance with all relevant federal and state
laws protecting and governing his medical information, they did not receive the services they
paid for.
123. The University’s deceptive, unlawful, and unfair conduct occurred in the course
of consumers contracting for medical treatment, and therefore occurred in the course of conduct
124. In sum, the University’s deceptive, unlawful, and unfair conduct caused Plaintiff
and the Class members monetary damage. They would have not paid for the University’s health
34
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care services had they known that the University would not keep their medical records private
and confidential, in violation of the University’s representations, and state and federal law.
125. Further, Plaintiff and the Class members have suffered and will continue to suffer
other forms of injury and/or harm including, but not limited to, anxiety, emotion distress, loss of
126. Plaintiff incorporates the foregoing allegations as if fully set forth herein.
127. Plaintiff and the Class members entered into a valid and enforceable agreement
with Defendant the University whereby the University promised to provide health care services
to Plaintiff and the Class, and Plaintiff and the Class agreed to pay money for such services.
128. A material part of the University’s promise to Plaintiff and the Class to provide
health care services was to keep their medical information private and confidential in accordance
with its Notice of Privacy Practices and Admission and Outpatient Agreement and
Authorization.
129. In its written services contracts, patients’ rights statements, and privacy policies,
the University expressly promised Plaintiff and the Class that it would comply with all HIPAA
standards, protect Plaintiff’s and the Class members’ medical information, and keep it
confidential in accordance with its Notice of Privacy Practices, Admission and Outpatient
130. The contracts required Defendant the University to safeguard Plaintiff’s and the
131. A meeting of the minds occurred, as Plaintiff and the Class agreed, inter alia, to
35
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provide accurate personal and family health information and to pay—either directly or indirectly
by paying their health care insurance premiums, co-pays, and/or insurance deductibles—the
University in exchange for the University’s agreement to, among other things, protect her
medical information.
132. Plaintiff and the Class fully performed their obligations under the contracts.
133. Defendant the University did not keep Plaintiff’s and the Class members’ medical
information private or confidential when, on information and belief, it disclosed their medical
134. The failure to meet these promises and obligations constitutes an express breach
of contract. In other words, the University breached its contracts with Plaintiff and the Class by
failing to keep their medical information private and confidential as described herein.
135. The University’s failure to fulfill its promises resulted in Plaintiff and the Class
136. Stated otherwise, because Plaintiff and the Class paid for privacy protections that
they did not receive—even though such protections were a material part of her contracts with the
137. As a result of the University’s breach, Plaintiff and the Class suffered damages in
the amount of the difference between the price they paid for the University’s services as
promised and the actual diminished value of its health care services.
138. Further, Plaintiff and the Class have suffered and will continue to suffer other
forms of injury and/or harm including, but not limited to, anxiety, emotional distress, loss of
36
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139. Plaintiff incorporates the foregoing allegation as if fully set forth herein.
140. In order to benefit from the University’s services, Plaintiff and the Class were
required to disclose medical information to the University, including their names, contact
information (address, phone and fax numbers, and email address), Social Security Numbers,
141. By providing that medical information, and upon the University’s acceptance of
such information, Plaintiff and the Class members, on the one hand, and the University, on the
other hand, entered into implied contracts whereby the University was obligated to take
reasonable steps to keep that information private and confidential, as promised by its Notice of
142. A meeting of the minds occurred, as Plaintiff and the Class members agreed, inter
alia, to provide their medical information and to pay—either directly or indirectly by paying
their health care insurance premiums, co-pays, and/or insurance deductibles—the University in
exchange for the University’s agreement to, among other things, provide medical care and keep
143. Plaintiff and the Class members fully performed their obligations under the
contracts.
144. Without such implied contracts, Plaintiff and the Class would not have provided
145. As described herein, the University did not keep Plaintiff’s and the Class
37
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146. Because the University provided Plaintiff’s and the Class members’ medical
information to Defendant Google, the University breached its implied contracts with Plaintiff
147. The failure to meet its promises and obligations constitutes a breach of contract.
In other words, the University breached its contracts by failing to keep Plaintiff’s and the Class
148. The University’s failure to fulfill its promises resulted in Plaintiff and the Class
receiving services that were of less value than they paid for.
149. Stated otherwise, because Plaintiff and the Class paid for privacy protections that
they did not receive—even though such protections were a material part of the contracts with the
University—Plaintiff and the Class did not receive the full benefit of the bargain.
150. As a result of the University’s breach, Plaintiff and the Class members suffered
damages in the amount of the difference between the price they paid for the University’s services
as promised and the actual diminished value of its health care services.
151. Further, Plaintiff and the Class have suffered and will continue to suffer other
forms of injury and/or harm including, but not limited to, anxiety, emotional distress, loss of
152. Plaintiff incorporates the foregoing allegations as if fully set forth herein.
153. Plaintiff and the Class members entered into a valid and enforceable agreement
with Defendant the University whereby the University promised to provide health care services
to Plaintiff and the Class, and Plaintiff and the Class agreed to pay money for such services.
38
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154. A material part of the University’s promise to Plaintiff and the Class to provide
health care services was to keep their medical information private and confidential in accordance
with its Notice of Privacy Practices and Admission and Outpatient Agreement and
Authorization.
155. In its written services contracts, patients’ rights statements, and privacy policies,
the University expressly promised Plaintiff and the Class that it would comply with all HIPAA
standards, protect Plaintiff’s and the Class members’ medical information, and keep it
confidential in accordance with its Notice of Privacy Practices, Admission and Outpatient
156. The contracts required Defendant the University to safeguard Plaintiff’s and the
157. Defendant Google had actual or constructive knowledge of Plaintiff’s and the
158. Google intentionally and without justification interfered with the University’s
contracts with its patients—like Plaintiff and the Class members—with respect to keeping their
159. As a result of the University’s breach, Plaintiff and the Class members suffered
damages in the amount of the difference between the price they paid for the University’s services
as promised and the actual diminished value of its health care services.
160. Further, Plaintiff and the Class have suffered and will continue to suffer other
forms of injury and/or harm including, but not limited to, anxiety, emotional distress, loss of
39
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161. Plaintiff incorporates the foregoing allegations as if fully set forth herein.
162. Defendants intentionally intruded upon Plaintiff’s and each of the Class members’
offensive to a reasonable person as it reveals intimate private details about their medical histories
—such as chronic conditions, life-threatening illnesses, whether a person has addiction issues,
disabilities, and issues related to pregnancy, along with personal details such as sexual
preferences, gender nonconformity, and sexually transmitted diseases—and that they believed
were confidential.
164. Defendants’ intrusion upon the Plaintiff’s and the Class members’ seclusion
caused Plaintiff and the Class members mental anguish and suffering in the form of anxiety and
165. Plaintiff incorporates the foregoing allegations as if fully set forth herein.
166. Plaintiff and the Class members conferred a benefit on Google in the form of
167. Defendant Google appreciates or has knowledge of the benefits conferred upon it
168. Under principles of equity and good conscience, the Defendant Google should not
40
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be permitted to retain any money derived from its acquisition of medical records, or the medical
records themselves belonging to Plaintiff and the Class members, because it does not have
169. Plaintiff incorporates the foregoing allegations as if fully set forth herein.
170. Plaintiff and the Class members conferred a benefit on the University in the form
171. Defendant the University appreciates or has knowledge of the benefits conferred
172. Under principles of equity and good conscience, Defendant the University should
not be permitted to retain any money derived from its provision of medical records to Google
173. Had Plaintiff and members of the Class been aware that the University was going
to share their medical records with Google, they would have paid less for their health care
174. Accordingly, as a result of Defendant the University’s conduct, Plaintiff and the
Class members suffered damages in the amount of the difference between the price they paid for
the University’s services as promised and the actual diminished value of the health care services
they received.
41
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the representative of the Class, and appointing his counsel as Class Counsel;
above, constitute a violation of the ICFA, a breach of express contract, a breach of implied
c) An order declaring that Defendant Google’s actions, as set out above, constitute
tortious interference with contract, intrusion upon seclusion, and unjust enrichment;
University of Chicago;
f) An order requiring Google to delete all patient records received from University
of Chicago;
h) Such other and further relief that the Court deems reasonable and just.
JURY DEMAND
Respectfully submitted,
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Jay Edelson
[email protected]
Benjamin H. Richman
[email protected]
Christopher L. Dore
[email protected]
J. Eli Wade-Scott
[email protected]
Michael W. Ovca
[email protected]
EDELSON PC
350 North LaSalle Street, 14th Floor
Chicago, Illinois 60654
Tel: 312.589.6370
Fax: 312.589.6378
43