Apert syndrome is a form of acrocephalosyndactyly, a congenital disorder characterized by malformations of the skull, face, hands and feet. It is classified as a branchial arch syndrome, affecting the first branchial (or pharyngeal) arch, the precursor of the maxilla and mandible. Disturbances in the development of the branchial arches in fetal development create lasting and widespread effects.
In 1906, Eugène Apert, a French physician, described nine people sharing similar attributes and characteristics. Linguistically, "acro" is Greek for "peak", referring to the "peaked" head that is common in the syndrome. "Cephalo", also from Greek, is a combining form meaning "head". "Syndactyly" refers to webbing of fingers and toes.
In embryology, the hands and feet have selective cells that die, called selective cell death or apoptosis, causing separation of the digits. In the case of acrocephalosyndactyly, selective cell death does not occur and skin, and rarely bone, between the fingers and toes fuses.
How is Apert syndrome diagnosed? | Boston Children's Hospital
Boston Children’s plastic surgeon Dr. Amir Taghinia discusses how Apert syndrome is diagnosed. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/T6Z_dGLLNZY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
________________________________________...
published: 07 Jul 2023
Apert syndrome
This is a lecture about the genetic disease Apert syndrome, intended for trainees and medical professionals. Lecture by Dustin Huynh, BS. Edited by Philip M. Boone, MD, PhD. We acknowledge Dr. Derek Steinbacher for helpful input on the script.
References:
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/apert-syndrome
StatPearls: https://www.ncbi.nlm.nih.gov/books/NBK518993/
Munshi et al J Oral Biol Craniofac Res 2018: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6107905/
GeneReviews: https://www.ncbi.nlm.nih.gov/books/NBK1455/
Goriely and Wilkie Am J Hum Genet 2012: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3276674/
Liu et al Intractable Rare Dis Res 2013 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4204555/
López-Estudillo Med Oral Patol Oral Cir Bucal 2017: https://www.ncb...
published: 21 Sep 2019
What causes Apert syndrome? | Boston Children's Hospital
Boston Children’s plastic surgeon Dr. Brian Labow discusses what causes Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/DejDspGfYhw
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-...
published: 07 Jul 2023
Who treats Apert syndrome? | Boston Children's Hospital
Boston Children’s Plastic Surgeon-in-Chief, Dr. John Meara, talks about the multidisciplinary team involved in treating Apert syndrome. To learn more about Apert syndrome, visit: https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/HwH5IRDNEzs
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
John Meara, MD, DMD, MBA
Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/john-g-meara
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
http...
published: 07 Jul 2023
Treating Apert Syndrome in young Angeliz
Pediatric Plastic Surgeon Dr. Matthew Greives with Children's Memorial Hermann Hospital explains how Craniofacial Surgery treats Apert Syndrome which helped young Angeliz.
published: 31 Jul 2019
What is the timeline for treating Apert syndrome feet? | Boston Children's Hospital
Boston Children’s plastic surgeon Dr. Brian Labow charts the timeline for treating Apert syndrome in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/2crNVWXUiBg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospita...
published: 10 Jul 2023
What is your hope for patients with Apert syndrome? | Boston Children's Hospital
Boston Children’s plastic surgeons Dr. Brian Labow and Dr. Amir Taghinia and share their hopes for their patients with Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/b0eGr3KJcpg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https...
published: 07 Jul 2023
Is surgery the only option for Apert syndrome? | Boston Children's Hospital
Boston Children’s plastic surgeon Dr. Brian Labow breaks down the goals of surgery when treating Apert syndrome. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/Ocz73U1gS1M
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org...
published: 11 Jul 2023
What is the timeline for treating hands with Apert syndrome? | Boston Children's Hospital
Boston Children’s plastic surgeon Dr. Amir Taghinia reviews the timeline for treating Apert syndrome in the hands and what to expect along the way. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/G35sGdI-RGY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #ape...
published: 09 Jul 2023
What does Apert syndrome look like in feet? | Boston Children's Hospital
Boston Children’s plastic surgeon Dr. Amir Taghinia highlights the different ways Apert syndrome can present in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/OJZQoEviQzU
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #feet
_________...
Boston Children’s plastic surgeon Dr. Amir Taghinia discusses how Apert syndrome is diagnosed. To learn more about Apert syndrome, visit https://www.childrensho...
Boston Children’s plastic surgeon Dr. Amir Taghinia discusses how Apert syndrome is diagnosed. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/T6Z_dGLLNZY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
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Boston Children’s plastic surgeon Dr. Amir Taghinia discusses how Apert syndrome is diagnosed. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/T6Z_dGLLNZY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
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This is a lecture about the genetic disease Apert syndrome, intended for trainees and medical professionals. Lecture by Dustin Huynh, BS. Edited by Philip M. Bo...
This is a lecture about the genetic disease Apert syndrome, intended for trainees and medical professionals. Lecture by Dustin Huynh, BS. Edited by Philip M. Boone, MD, PhD. We acknowledge Dr. Derek Steinbacher for helpful input on the script.
References:
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/apert-syndrome
StatPearls: https://www.ncbi.nlm.nih.gov/books/NBK518993/
Munshi et al J Oral Biol Craniofac Res 2018: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6107905/
GeneReviews: https://www.ncbi.nlm.nih.gov/books/NBK1455/
Goriely and Wilkie Am J Hum Genet 2012: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3276674/
Liu et al Intractable Rare Dis Res 2013 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4204555/
López-Estudillo Med Oral Patol Oral Cir Bucal 2017: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5813983/
Genetics Home Reference: https://ghr.nlm.nih.gov/gene/FGFR2
This is a lecture about the genetic disease Apert syndrome, intended for trainees and medical professionals. Lecture by Dustin Huynh, BS. Edited by Philip M. Boone, MD, PhD. We acknowledge Dr. Derek Steinbacher for helpful input on the script.
References:
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/apert-syndrome
StatPearls: https://www.ncbi.nlm.nih.gov/books/NBK518993/
Munshi et al J Oral Biol Craniofac Res 2018: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6107905/
GeneReviews: https://www.ncbi.nlm.nih.gov/books/NBK1455/
Goriely and Wilkie Am J Hum Genet 2012: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3276674/
Liu et al Intractable Rare Dis Res 2013 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4204555/
López-Estudillo Med Oral Patol Oral Cir Bucal 2017: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5813983/
Genetics Home Reference: https://ghr.nlm.nih.gov/gene/FGFR2
Boston Children’s plastic surgeon Dr. Brian Labow discusses what causes Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital....
Boston Children’s plastic surgeon Dr. Brian Labow discusses what causes Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/DejDspGfYhw
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
Pinterest: https://www.pinterest.com/bostonchildrens/
Facebook: https://www.facebook.com/BostonChildrensHospital/
Snapchat: https://www.snapchat.com/add/bostonchildrens
LinkedIn: https://www.linkedin.com/company/bostonchildrenshospital/mycompany/
Boston Children’s plastic surgeon Dr. Brian Labow discusses what causes Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/DejDspGfYhw
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
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Boston Children’s Plastic Surgeon-in-Chief, Dr. John Meara, talks about the multidisciplinary team involved in treating Apert syndrome. To learn more about Aper...
Boston Children’s Plastic Surgeon-in-Chief, Dr. John Meara, talks about the multidisciplinary team involved in treating Apert syndrome. To learn more about Apert syndrome, visit: https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/HwH5IRDNEzs
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
John Meara, MD, DMD, MBA
Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/john-g-meara
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #apert #treatment
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
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Boston Children’s Plastic Surgeon-in-Chief, Dr. John Meara, talks about the multidisciplinary team involved in treating Apert syndrome. To learn more about Apert syndrome, visit: https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/HwH5IRDNEzs
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
John Meara, MD, DMD, MBA
Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/john-g-meara
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #apert #treatment
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
Pinterest: https://www.pinterest.com/bostonchildrens/
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Pediatric Plastic Surgeon Dr. Matthew Greives with Children's Memorial Hermann Hospital explains how Craniofacial Surgery treats Apert Syndrome which helped you...
Pediatric Plastic Surgeon Dr. Matthew Greives with Children's Memorial Hermann Hospital explains how Craniofacial Surgery treats Apert Syndrome which helped young Angeliz.
Pediatric Plastic Surgeon Dr. Matthew Greives with Children's Memorial Hermann Hospital explains how Craniofacial Surgery treats Apert Syndrome which helped young Angeliz.
Boston Children’s plastic surgeon Dr. Brian Labow charts the timeline for treating Apert syndrome in the feet. To learn more about Apert syndrome, visit https:/...
Boston Children’s plastic surgeon Dr. Brian Labow charts the timeline for treating Apert syndrome in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/2crNVWXUiBg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
Pinterest: https://www.pinterest.com/bostonchildrens/
Facebook: https://www.facebook.com/BostonChildrensHospital/
Snapchat: https://www.snapchat.com/add/bostonchildrens
LinkedIn: https://www.linkedin.com/company/bostonchildrenshospital/mycompany/
Boston Children’s plastic surgeon Dr. Brian Labow charts the timeline for treating Apert syndrome in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/2crNVWXUiBg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
Pinterest: https://www.pinterest.com/bostonchildrens/
Facebook: https://www.facebook.com/BostonChildrensHospital/
Snapchat: https://www.snapchat.com/add/bostonchildrens
LinkedIn: https://www.linkedin.com/company/bostonchildrenshospital/mycompany/
Boston Children’s plastic surgeons Dr. Brian Labow and Dr. Amir Taghinia and share their hopes for their patients with Apert syndrome. To learn more about Apert...
Boston Children’s plastic surgeons Dr. Brian Labow and Dr. Amir Taghinia and share their hopes for their patients with Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/b0eGr3KJcpg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
Connect with us!
Instagram https://www.instagram.com/bostonchildrens/
Pinterest: https://www.pinterest.com/bostonchildrens/
Facebook: https://www.facebook.com/BostonChildrensHospital/
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Boston Children’s plastic surgeons Dr. Brian Labow and Dr. Amir Taghinia and share their hopes for their patients with Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/b0eGr3KJcpg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
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Boston Children’s plastic surgeon Dr. Brian Labow breaks down the goals of surgery when treating Apert syndrome. Learn more about Apert syndrome at https://www....
Boston Children’s plastic surgeon Dr. Brian Labow breaks down the goals of surgery when treating Apert syndrome. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/Ocz73U1gS1M
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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Boston Children’s plastic surgeon Dr. Brian Labow breaks down the goals of surgery when treating Apert syndrome. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/Ocz73U1gS1M
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
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Boston Children’s plastic surgeon Dr. Amir Taghinia reviews the timeline for treating Apert syndrome in the hands and what to expect along the way. Learn more a...
Boston Children’s plastic surgeon Dr. Amir Taghinia reviews the timeline for treating Apert syndrome in the hands and what to expect along the way. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/G35sGdI-RGY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #hands
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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Boston Children’s plastic surgeon Dr. Amir Taghinia reviews the timeline for treating Apert syndrome in the hands and what to expect along the way. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/G35sGdI-RGY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #hands
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
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Boston Children’s plastic surgeon Dr. Amir Taghinia highlights the different ways Apert syndrome can present in the feet. To learn more about Apert syndrome, vi...
Boston Children’s plastic surgeon Dr. Amir Taghinia highlights the different ways Apert syndrome can present in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/OJZQoEviQzU
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #feet
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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Boston Children’s plastic surgeon Dr. Amir Taghinia highlights the different ways Apert syndrome can present in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/OJZQoEviQzU
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #feet
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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Boston Children’s plastic surgeon Dr. Amir Taghinia discusses how Apert syndrome is diagnosed. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/T6Z_dGLLNZY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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This is a lecture about the genetic disease Apert syndrome, intended for trainees and medical professionals. Lecture by Dustin Huynh, BS. Edited by Philip M. Boone, MD, PhD. We acknowledge Dr. Derek Steinbacher for helpful input on the script.
References:
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/apert-syndrome
StatPearls: https://www.ncbi.nlm.nih.gov/books/NBK518993/
Munshi et al J Oral Biol Craniofac Res 2018: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6107905/
GeneReviews: https://www.ncbi.nlm.nih.gov/books/NBK1455/
Goriely and Wilkie Am J Hum Genet 2012: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3276674/
Liu et al Intractable Rare Dis Res 2013 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4204555/
López-Estudillo Med Oral Patol Oral Cir Bucal 2017: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5813983/
Genetics Home Reference: https://ghr.nlm.nih.gov/gene/FGFR2
Boston Children’s plastic surgeon Dr. Brian Labow discusses what causes Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/DejDspGfYhw
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
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Boston Children’s Plastic Surgeon-in-Chief, Dr. John Meara, talks about the multidisciplinary team involved in treating Apert syndrome. To learn more about Apert syndrome, visit: https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/HwH5IRDNEzs
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
John Meara, MD, DMD, MBA
Plastic Surgeon-in-Chief
https://www.childrenshospital.org/directory/john-g-meara
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #apert #treatment
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
_________________________________________________________________________
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Pediatric Plastic Surgeon Dr. Matthew Greives with Children's Memorial Hermann Hospital explains how Craniofacial Surgery treats Apert Syndrome which helped young Angeliz.
Boston Children’s plastic surgeon Dr. Brian Labow charts the timeline for treating Apert syndrome in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/2crNVWXUiBg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
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Boston Children’s plastic surgeons Dr. Brian Labow and Dr. Amir Taghinia and share their hopes for their patients with Apert syndrome. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/b0eGr3KJcpg
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
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Boston Children’s plastic surgeon Dr. Brian Labow breaks down the goals of surgery when treating Apert syndrome. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/Ocz73U1gS1M
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Meet the Expert:
Brian Labow, MD
Associate Plastic Surgeon-in Chief
https://www.childrenshospital.org/directory/brian-i-labow
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
Request an Appointment: https://www.childrenshospital.org/request-an-appointment
Find a location near you: https://www.childrenshospital.org/about-us/locations
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Boston Children’s plastic surgeon Dr. Amir Taghinia reviews the timeline for treating Apert syndrome in the hands and what to expect along the way. Learn more about Apert syndrome at https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/G35sGdI-RGY
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #hands
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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Find a location near you: https://www.childrenshospital.org/about-us/locations
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Boston Children’s plastic surgeon Dr. Amir Taghinia highlights the different ways Apert syndrome can present in the feet. To learn more about Apert syndrome, visit https://www.childrenshospital.org/conditions/apert-syndrome
▶Share this video with others: https://youtu.be/OJZQoEviQzU
▶Subscribe for more videos from Boston Children’s Hospital: https://www.youtube.com/@ChildrensHospital
▶Program mentioned:
Cleft and Craniofacial Center
https://www.childrenshospital.org/programs/cleft-and-craniofacial-center
▶More Resources and Answers for Patients & Families:
The Cleft and Craniofacial Center believes in delivering top care for your child.
https://www.childrenshospital.org/conditions/apert-syndrome
#BostonChildrensHospital #Pediatrics #Apertsyndrome #craniofacial #apert #feet
_________________________________________________________________________
Boston Children’s Hospital Homepage: https://www.childrenshospital.org/
Find a Doctor: https://www.childrenshospital.org/clinician-finder
Get an Online Second Opinion: https://www.childrenshospital.org/patient-resources/second-opinion-program
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Apert syndrome is a form of acrocephalosyndactyly, a congenital disorder characterized by malformations of the skull, face, hands and feet. It is classified as a branchial arch syndrome, affecting the first branchial (or pharyngeal) arch, the precursor of the maxilla and mandible. Disturbances in the development of the branchial arches in fetal development create lasting and widespread effects.
In 1906, Eugène Apert, a French physician, described nine people sharing similar attributes and characteristics. Linguistically, "acro" is Greek for "peak", referring to the "peaked" head that is common in the syndrome. "Cephalo", also from Greek, is a combining form meaning "head". "Syndactyly" refers to webbing of fingers and toes.
In embryology, the hands and feet have selective cells that die, called selective cell death or apoptosis, causing separation of the digits. In the case of acrocephalosyndactyly, selective cell death does not occur and skin, and rarely bone, between the fingers and toes fuses.
Show Caption. Hide Caption. Adoptions from China stopped after decades of one-child policy ... Then May ... One young boy, who was born with Apert Syndrome, has since had surgery that will allow his brain to continue to grow within his skull.
View this post on Instagram. A post shared by BetterUp (@betterup) ...Prince Harry meets Lewis Connett, 11, who taught himself to play cricket one-handed despite living with Apert Syndrome, a condition that affects the bones in his head, hands and feet ... .
Prince Harry meets Lewis Connett, 11, who taught himself to play cricket one-handed despite living with Apert Syndrome, a condition that affects the bones in his head, hands and feet ... ANALYSIS ... He has been without Meghan ... Advertisement ... He continued ... .
When Claire Coumos was born, doctors told her parents she'd never have any dexterity in her fingers ... Claire's steer was the biggest one at the fair ... Claire, a middle child among six children in the Coumos family, was born with Apert syndrome ... 22.
The Geordie Shore star, 37, welcomed baby Oakly in the spring of 2003 and the couple initially kept the news that he had been born Apert Syndrome to themselves until recently ... called Apert Syndrome.
Oakley was born with Apert Syndrome and it was revealed he would be 'in and out of surgery for 18-24 months' and Aaron wants to be around for him. The NHS describes Apert Syndrome as 'a type of complex ...
Former OKC detective JonnyLambert builds large YouTube following. Jonny Lambert has built a large YouTube following ...Vlad was born with Apert syndrome, a genetic disorder that causes fusion of bones in the skull, hands and feet ... I’m not an artist.
An umbrella term that covers numerous related syndromes, ... Apert syndrome, meanwhile, occurs in roughly one in every 80,000 to 160,000 births, and results in deformities in the skull, hands and feet.
When we think of the effects of age on baby-making, we tend to focus on women ... Infertility ... They include conditions such as achondroplasia, which causes dwarfism, and Apert syndrome, which leads to a misshapen skull and fused fingers and toes ... .
She was born in 1968 with Apert syndrome, which causes the fusion of bones in the feet, hands and skull ... Kaddy Thomas says she was abandoned by her mother as an infant for having Apert syndrome ... He was born with Apert syndrome, just like her.
The full-time carer was born with a rare condition called Apert Syndrome in 1968... Apert syndrome, also known as acrocephalosyndactyly, is a genetic disorder that causes fusion of the skull, hands, and feet bones ... What is Apert Syndrome?.
Last week, Talia shared images of their son's face for the first time while revealing he has the rare genetic condition Apert Syndrome ... months, was born with Apert Syndrome, in a heartbreaking update.
After keeping his diagnosis private, Talia explained that Oakley, 7 months, was born with Apert Syndrome, in a heartbreaking update shared this week ... 'Apert Syndrome causes the premature fusion of sutures in the skull, causing a different head shape.
In a new Instagram post sharing the first pictures of Oakley, Talia explained that he was born with a rare genetic syndrome called Apert Syndrome, as she opened up on her ‘toughest months’ ... Syndrome.’.